Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign up Log in
What is This Site Help Center Crisis
Powered By

Browse All

Types (181)

More

Spinal Muscular Atrophy (159)

Nusinersen Improves Motor Function, Quality of Life in Adults With SMA, Studies Find
Are Clinical Trials Safe for People With SMA?
Living as a Superhero
Gaming With SMA: Choosing a Gaming Platform

Type 0 Sma (20)

What Is Kugelberg-Welander Disease?
The Role of SMN1 and SMN2 Genes in Spinal Muscular Atrophy
The Genetics of Spinal Muscular Atrophy
The Difference Between SMA and Myotubular Myopathy

Type 1 Sma (44)

Spinraza Alone May Be Better Than Combining It With Zolgensma To Treat SMA Type 1
Majority of U.S. Newborns Now Screened for SMA
More Than Half of People Who Start Spinraza for SMA Stop Within 2 Years, Study Finds
Breathing Remains Stable for Infants With SMA Type 1 Taking Spinraza, Study Shows

Type 2 Sma (50)

Young Adults With Disabilities Cite Pitfalls in Transitioning From Pediatric to Adult Care
Wearable Cyborg Limb Shows Promise as Walking Treatment for SMA
Spinraza Boosts Fine Motor Skills in Children With SMA Type 2, Study Finds
Osteoporosis, Low Bone Density Common in Children With SMA Types 2 and 3

Type 3 Sma (54)

The Challenges of Motherhood With SMA
The Challenges of Working With SMA
In Type 3 SMA, Breathing and Upper-Body Function Worsen After Walking Stops
Living as a Superhero

Type 4 Sma (35)

Nasal Regurgitation With Spinal Muscular Atrophy
SMA and ALS: 5 Differences and 3 Similarities
The Role of SMN1 and SMN2 Genes in Spinal Muscular Atrophy
Can Ultrasound Help in Assessing Spinal Muscular Atrophy?

Distal Sma (4)

Types of Spinal Muscular Atrophy: How They Differ
The Genetics of Spinal Muscular Atrophy
Charcot-Marie-Tooth Disease and SMA: What Are the Differences?
What Causes Spinal Muscular Atrophy? 5 Facts To Know

Kennedy's Disease (6)

Types of Spinal Muscular Atrophy: How They Differ
Understanding Spinal-Bulbar Muscular Atrophy (SBMA)
The Genetics of Spinal Muscular Atrophy
What Is Kennedy's Disease? Rarity and Testing

Sma With Progressive Myoclonic Epilepsy (3)

What Causes Spinal Muscular Atrophy? 5 Facts To Know
Types of Spinal Muscular Atrophy: How They Differ
The Genetics of Spinal Muscular Atrophy

Sma With Respiratory Distress (Smard) (8)

Spinal Muscular Atrophy With Respiratory Distress (SMARD)
Genetic Testing in Spinal Muscular Atrophy
What Causes Spinal Muscular Atrophy? 5 Facts To Know
The Genetics of Spinal Muscular Atrophy

Sma With Lower Extremity Predominance (6)

What Is SMA-LED?
Types of Spinal Muscular Atrophy: How They Differ
Charcot-Marie-Tooth Disease and SMA: What Are the Differences?
5 Spinal Muscular Atrophy Symptoms and Signs To Watch For

X Linked Infantile Sma (2)

What Causes Spinal Muscular Atrophy? 5 Facts To Know
Types of Spinal Muscular Atrophy: How They Differ

Treatments (93)

More

Zolgensma (Onasemnogene Abeparvovac Xioi) (42)

Improved SMA Screening and Greater Awareness in Pediatricians Key to Early Diagnosis
Spinraza Alone May Be Better Than Combining It With Zolgensma To Treat SMA Type 1
SMA Medication Zolgensma May Cause Liver Failure, Warns New Label Update
New Study: Zolgensma May Benefit Adults With SMA Types 2 and 3

Vertical Expandable Prosthetic Titanium Rib (Veptr) (1)

SMA Comorbidities: Scoliosis, Breathing Difficulties, and More

Surgery For Scoliosis (14)

Facts and Statistics About Spinal Muscular Atrophy
Spinal Muscular Atrophy Type 3
Quiz: Do You Know Everything You Need To Know About Scoliosis?
Managing Gastric Reflux in SMA

Spinraza (Nusinersen) (58)

Long-Term Data: Children With Type 1 SMA Keep Gaining Motor Skills After 3 Years on Evrysdi
Scoliosis Surgery in Kids With SMA Can Cause Serious Complications, Research Finds
Nusinersen Improves Motor Function, Quality of Life in Adults With SMA, Studies Find
Evrysdi Development Team Wins Drug Discovery Award for Oral SMA Treatment

Speech Therapy (13)

Study Finds Chewing Difficulties Common in SMA Types 2 and 3
Nasal Regurgitation With Spinal Muscular Atrophy
Building Medical Support Teams for Spinal Muscular Atrophy
Pediatric Neuromuscular Disorders: 9 Things To Know

Respiratory Therapy (13)

Parenting a Child With SMA
Spinal Muscular Atrophy Type 2
Muscle Weakness in Spinal Muscular Atrophy
Assistive Equipment for Spinal Muscular Atrophy

Physical Therapy (34)

Wheelchair Hockey and Other Adaptive Sports Score Big Health Benefits for People With SMA
Assistive Equipment for Spinal Muscular Atrophy
Wearable Cyborg Limb Shows Promise as Walking Treatment for SMA
The Decision To Get a Scooter

Occupational Therapy (22)

Pediatric Neuromuscular Disorders: 9 Things To Know
Standers for SMA — Tips for Using Specialized Equipment
The Difference Between SMA and Myotubular Myopathy
Parenting a Child With SMA

Nutrition (8)

How To Use a Feeding Tube at Home: 12 Tips for Caregivers
SMA Diet and Eating Tips
Building Medical Support Teams for Spinal Muscular Atrophy
Difficulty Swallowing With Spinal Muscular Atrophy

Non Invasive Breathing Support (17)

Breathing Remains Stable for Infants With SMA Type 1 Taking Spinraza, Study Shows
Building Medical Support Teams for Spinal Muscular Atrophy
Respiratory Equipment for SMA: What To Look For
BiPAP and Spinal Muscular Atrophy

Nasojejunal (Nj) Tube (1)

Difficulty Swallowing With Spinal Muscular Atrophy

Nasogastric (Ng) Tube (9)

How To Use a Feeding Tube at Home: 12 Tips for Caregivers
Spinal Muscular Atrophy Type 1
Building Medical Support Teams for Spinal Muscular Atrophy
Pneumonia and SMA: How To Lower Your Risk

Immunizations (1)

Spinal Muscular Atrophy Treatment and Therapy Options

Gastronomy (G) Tube (11)

How To Use a Feeding Tube at Home: 12 Tips for Caregivers
5 Spinal Muscular Atrophy Symptoms and Signs To Watch For
Spinal Muscular Atrophy Type 1
Nasal Regurgitation With Spinal Muscular Atrophy

G Tube And Nissen Fundoplication (Stomach Wrap) (1)

Managing Gastric Reflux in SMA

Exercise (10)

Fatigue and Spinal Muscular Atrophy
Standers for SMA — Tips for Using Specialized Equipment
5 Types of SMA Physical Therapy and Tips for Success
My Perspective: Anti-Gravity Treadmill

Evrysdi (Risdiplam) (37)

Evrysdi Development Team Wins Drug Discovery Award for Oral SMA Treatment
How Do Clinical Trials Work for SMA?
Participants Sought for Clinical Trial of SMA Muscle Therapy Apitegromab
Study Recruiting for New Add-On SMA Treatment

Clinical Trials (8)

How Do Clinical Trials Work for SMA?
5 Reasons To Consider Participating in SMA Clinical Trials
Are Clinical Trials Safe for People With SMA?
New Trial Will Test Higher Dose of Nusinersen for People With Later-Onset SMA

Topics (185)

More

Personal Stories (39)

Living as a Superhero
The Challenges of Working With SMA
Brothers With SMA Complete Their Doctorates Weeks Apart
Take the Pain and Make Art: An Interview With Will Stocker About His Film “Crippled”

News (77)

Are Clinical Trials Safe for People With SMA?
How Do Clinical Trials Work for SMA?
5 Reasons To Consider Participating in SMA Clinical Trials
Evrysdi Development Team Wins Drug Discovery Award for Oral SMA Treatment

Expertise Level (67)

Are People With SMA Eligible for Moderna and Johnson & Johnson Booster Shots?
Finding My Voice for Self-Advocacy
Improved SMA Screening and Greater Awareness in Pediatricians Key to Early Diagnosis
Rare Case of SMA Caused by Non-5q Mutation

Format (137)

Emergency Room Advice for People With SMA
Dating With SMA: Love Is Out There, But Finding It Takes Strength
Are Clinical Trials Safe for People With SMA?
The Vitality of Online Gaming With SMA

Multiple Diagnoses (29)

More

Adult Still’s Disease (Asd) (1)

SMA Treatment for Children vs. Adults: 5 Key Differences

Adverse Childhood Experiences (Ace) (8)

SMA Newborn Screening: Your Guide
Pediatric Neuromuscular Disorders: 9 Things To Know
Talking to Others About Your Child’s SMA
Your Child Is Newly Diagnosed With SMA. Now What?

Amyotrophic Lateral Sclerosis (Als) (2)

SMA and ALS: 5 Differences and 3 Similarities
What Is Kennedy's Disease? Rarity and Testing

Anxiety (2)

Staying Afloat Amidst a Pandemic and a Psychological Crisis
How Spinal Muscular Atrophy Can Affect Your Mental Health

Cardiomyopathy (1)

Cardiomyopathy in Spinal Muscular Atrophy

Depression (5)

How Spinal Muscular Atrophy Can Affect Your Mental Health
5 Spinal Muscular Atrophy Symptoms and Signs To Watch For
Staying Afloat Amidst a Pandemic and a Psychological Crisis
SMA: Nutrition, Exercise, and Mental Health Tips

Gastroesophageal Reflux Disease (Gerd) (3)

SMA Diet and Eating Tips
Managing Gastric Reflux in SMA
Beyond Muscle Wasting: Other Ways SMA Affects the Body

Guillain–Barré Syndrome (1)

What Is Kennedy's Disease? Rarity and Testing

Heart Disease (1)

Beyond Muscle Wasting: Other Ways SMA Affects the Body

Infertility (1)

Beyond Muscle Wasting: Other Ways SMA Affects the Body

Insomnia (1)

How Spinal Muscular Atrophy Can Affect Your Mental Health

Liver Disease (1)

SMA Medication Zolgensma May Cause Liver Failure, Warns New Label Update

Lower Back Pain (1)

Sacroiliac Joint Dysfunction and SMA

Multiple Sclerosis (1)

What Is Kennedy's Disease? Rarity and Testing

Obesity (1)

SMA: Nutrition, Exercise, and Mental Health Tips

Osteoporosis (3)

SMA: Nutrition, Exercise, and Mental Health Tips
Osteoporosis, Low Bone Density Common in Children With SMA Types 2 and 3
Bone Fractures and Spinal Muscular Atrophy

Pregnancy Induced High Blood Pressure (1)

6 Facts About Pregnancy With SMA

Sleep Apnea (1)

How Spinal Muscular Atrophy Can Affect Your Mental Health

Social Anxiety Disorder (1)

Making Friends and Overcoming Social Anxiety With SMA

Spinal Disc Herniation (Slipped Or Bulging Disc) (1)

Paraspinal Muscular Atrophy vs. Spinal Muscular Atrophy: What’s the Difference?

Spinal Stenosis (1)

Paraspinal Muscular Atrophy vs. Spinal Muscular Atrophy: What’s the Difference?

Spine Problems (1)

Paraspinal Muscular Atrophy vs. Spinal Muscular Atrophy: What’s the Difference?

Tay–Sachs Disease (1)

Tay-Sachs vs. Spinal Muscular Atrophy: Comparing Late-Onset Forms

Thank you for subscribing!

Become a member to get even more

See answer
See answer