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Types (181)

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Spinal Muscular Atrophy (159)

What Makes a Good Doctor for People With SMA?
Study Recruiting for New Add-On SMA Treatment
Spinraza Boosts Fine Motor Skills in Children With SMA Type 2, Study Finds
Dating With SMA: Love Is Out There, But Finding It Takes Strength

Type 0 Sma (20)

The Difference Between SMA and Myotubular Myopathy
What Is Kugelberg-Welander Disease?
SMA and ALS: 5 Differences and 3 Similarities
SMA Awareness Month: How To Participate

Type 1 Sma (44)

How Is SMA Diagnosed? Testing and More
What Causes Spinal Muscular Atrophy? 5 Facts To Know
5 Spinal Muscular Atrophy Symptoms and Signs To Watch For
Muscle Weakness in Spinal Muscular Atrophy

Type 2 Sma (50)

5 Spinal Muscular Atrophy Symptoms and Signs To Watch For
What Is Spinal Muscular Atrophy?
Muscle Weakness in Spinal Muscular Atrophy
Types of Spinal Muscular Atrophy: How They Differ

Type 3 Sma (54)

Muscle Weakness in Spinal Muscular Atrophy
Difficulty Swallowing With Spinal Muscular Atrophy
Types of Spinal Muscular Atrophy: How They Differ
What Causes Spinal Muscular Atrophy? 5 Facts To Know

Type 4 Sma (35)

What Is Spinal Muscular Atrophy?
SMA Treatment for Children vs. Adults: 5 Key Differences
How Is SMA Diagnosed? Testing and More
5 Spinal Muscular Atrophy Symptoms and Signs To Watch For

Distal Sma (4)

What Causes Spinal Muscular Atrophy? 5 Facts To Know
The Genetics of Spinal Muscular Atrophy
Types of Spinal Muscular Atrophy: How They Differ
Charcot-Marie-Tooth Disease and SMA: What Are the Differences?

Kennedy's Disease (6)

What Is Kennedy's Disease? Rarity and Testing
The Genetics of Spinal Muscular Atrophy
Types of Spinal Muscular Atrophy: How They Differ
What Causes Spinal Muscular Atrophy? 5 Facts To Know

Sma With Progressive Myoclonic Epilepsy (3)

Types of Spinal Muscular Atrophy: How They Differ
The Genetics of Spinal Muscular Atrophy
What Causes Spinal Muscular Atrophy? 5 Facts To Know

Sma With Respiratory Distress (Smard) (8)

How Is SMA Diagnosed? Testing and More
Spinal Muscular Atrophy With Respiratory Distress (SMARD)
Genetic Testing in Spinal Muscular Atrophy
5 Spinal Muscular Atrophy Symptoms and Signs To Watch For

Sma With Lower Extremity Predominance (6)

What Causes Spinal Muscular Atrophy? 5 Facts To Know
Charcot-Marie-Tooth Disease and SMA: What Are the Differences?
The Genetics of Spinal Muscular Atrophy
Types of Spinal Muscular Atrophy: How They Differ

X Linked Infantile Sma (2)

What Causes Spinal Muscular Atrophy? 5 Facts To Know
Types of Spinal Muscular Atrophy: How They Differ

Treatments (93)

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Zolgensma (Onasemnogene Abeparvovac Xioi) (42)

Tips for Staying on Spinal Muscular Atrophy (SMA) Therapies
My Perspective: Victoria Strong's Story - Never Give Up
The Importance of Splicing in SMA Treatment
Spinal Muscular Atrophy Type 1

Vertical Expandable Prosthetic Titanium Rib (Veptr) (1)

SMA Comorbidities: Scoliosis, Breathing Difficulties, and More

Surgery For Scoliosis (14)

Spinal Muscular Atrophy Type 2
Spinal Muscular Atrophy Treatment and Therapy Options
What Is Spinal Muscular Atrophy?
Implanted Catheter May Ease Delivery of Spinraza for SMA, but Approach Comes With Risks

Spinraza (Nusinersen) (58)

Spinal Muscular Atrophy Treatment and Therapy Options
SMA Treatment for Children vs. Adults: 5 Key Differences
Tips for Staying on Spinal Muscular Atrophy (SMA) Therapies
My Perspective: Anti-Gravity Treadmill

Speech Therapy (13)

What Is Spinal Muscular Atrophy?
Difficulty Swallowing With Spinal Muscular Atrophy
Building Medical Support Teams for Spinal Muscular Atrophy
Pediatric Neuromuscular Disorders: 9 Things To Know

Respiratory Therapy (13)

Parenting a Child With SMA
What Is Spinal Muscular Atrophy?
Spinal Muscular Atrophy Type 4
Assistive Equipment for Spinal Muscular Atrophy

Physical Therapy (34)

The Decision To Get a Scooter
Ways To Make Your Home More SMA-Friendly
Wearable Cyborg Limb Shows Promise as Walking Treatment for SMA
Assistive Equipment for Spinal Muscular Atrophy

Occupational Therapy (22)

Your Child Is Newly Diagnosed With SMA. Now What?
Parenting a Child With SMA
Talking to Others About Your Child’s SMA
Pneumonia and SMA: How To Lower Your Risk

Nutrition (8)

Fatty Acids, Nutrition, and SMA: Can Changes in Diet Help?
How To Use a Feeding Tube at Home: 12 Tips for Caregivers
SMA: Nutrition, Exercise, and Mental Health Tips
Difficulty Swallowing With Spinal Muscular Atrophy

Non Invasive Breathing Support (17)

Pneumonia and SMA: How To Lower Your Risk
Building Medical Support Teams for Spinal Muscular Atrophy
Spinal Muscular Atrophy Type 1
Managing Gastric Reflux in SMA

Nasojejunal (Nj) Tube (1)

Difficulty Swallowing With Spinal Muscular Atrophy

Nasogastric (Ng) Tube (9)

How To Use a Feeding Tube at Home: 12 Tips for Caregivers
Assistive Equipment for Spinal Muscular Atrophy
Difficulty Swallowing With Spinal Muscular Atrophy
Pneumonia and SMA: How To Lower Your Risk

Immunizations (1)

Spinal Muscular Atrophy Treatment and Therapy Options

Gastronomy (G) Tube (11)

Managing Gastric Reflux in SMA
Spinal Muscular Atrophy Type 1
Spinal Muscular Atrophy Treatment and Therapy Options
Assistive Equipment for Spinal Muscular Atrophy

G Tube And Nissen Fundoplication (Stomach Wrap) (1)

Managing Gastric Reflux in SMA

Exercise (10)

Muscle Weakness in Spinal Muscular Atrophy
SMA: Nutrition, Exercise, and Mental Health Tips
Spinal Muscular Atrophy Treatment and Therapy Options
Fatigue and Spinal Muscular Atrophy

Evrysdi (Risdiplam) (37)

Considering the Transition to Adult Care for SMA: A Q&A With Dr. Strober
Improved SMA Screening and Greater Awareness in Pediatricians Key to Early Diagnosis
New Trial Will Test Higher Dose of Nusinersen for People With Later-Onset SMA
Participants Sought for Clinical Trial of SMA Muscle Therapy Apitegromab

Clinical Trials (8)

Participants Sought for Clinical Trial of SMA Muscle Therapy Apitegromab
New Trial Will Test Higher Dose of Nusinersen for People With Later-Onset SMA
Talking to Others About Your Child’s SMA
Study Recruiting for New Add-On SMA Treatment

Topics (185)

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Personal Stories (39)

Staying Afloat Amidst a Pandemic and a Psychological Crisis
Independence Starts With Desire
My Perspective: Victoria Strong's Story - Never Give Up
Review: ‘I Live a Life Like Yours’

News (77)

Evrysdi Development Team Wins Drug Discovery Award for Oral SMA Treatment
Study Recruiting for New Add-On SMA Treatment
Long-Term Data: Children With Type 1 SMA Keep Gaining Motor Skills After 3 Years on Evrysdi
Breathing Remains Stable for Infants With SMA Type 1 Taking Spinraza, Study Shows

Roles (65)

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Parent (11)

SMA Support Online
My Perspective: Victoria Strong's Story - Never Give Up
SMA Newborn Screening: Your Guide
Parenting a Child With SMA

Caregiver (13)

SMA Support Online
Talking to Others About Your Child’s SMA
Watch on Demand: How To Live Independently and Thrive With SMA
How To Use a Feeding Tube at Home: 12 Tips for Caregivers

Multiple Diagnoses (29)

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Adult Still’s Disease (Asd) (1)

SMA Treatment for Children vs. Adults: 5 Key Differences

Adverse Childhood Experiences (Ace) (8)

SMA Support Online
SMA Treatment for Children vs. Adults: 5 Key Differences
Talking to Others About Your Child’s SMA
SMA Newborn Screening: Your Guide

Amyotrophic Lateral Sclerosis (Als) (2)

What Is Kennedy's Disease? Rarity and Testing
SMA and ALS: 5 Differences and 3 Similarities

Anxiety (2)

How Spinal Muscular Atrophy Can Affect Your Mental Health
Staying Afloat Amidst a Pandemic and a Psychological Crisis

Cardiomyopathy (1)

Cardiomyopathy in Spinal Muscular Atrophy (SMA)

Depression (5)

5 Spinal Muscular Atrophy Symptoms and Signs To Watch For
How Spinal Muscular Atrophy Can Affect Your Mental Health
Staying Afloat Amidst a Pandemic and a Psychological Crisis
Understanding Depression and Spinal Muscular Atrophy

Gastroesophageal Reflux Disease (Gerd) (3)

Beyond Muscle Wasting: Other Ways SMA Affects the Body
SMA Diet and Eating Tips
Managing Gastric Reflux in SMA

Guillain–Barré Syndrome (1)

What Is Kennedy's Disease? Rarity and Testing

Heart Disease (1)

Beyond Muscle Wasting: Other Ways SMA Affects the Body

Infertility (1)

Beyond Muscle Wasting: Other Ways SMA Affects the Body

Insomnia (1)

How Spinal Muscular Atrophy Can Affect Your Mental Health

Liver Disease (1)

SMA Medication Zolgensma May Cause Liver Failure, Warns New Label Update

Lower Back Pain (1)

Sacroiliac Joint Dysfunction and SMA

Multiple Sclerosis (1)

What Is Kennedy's Disease? Rarity and Testing

Obesity (1)

SMA: Nutrition, Exercise, and Mental Health Tips

Osteoporosis (3)

Osteoporosis, Low Bone Density Common in Children With SMA Types 2 and 3
SMA: Nutrition, Exercise, and Mental Health Tips
Bone Fractures and Spinal Muscular Atrophy

Pregnancy Induced High Blood Pressure (1)

6 Facts About Pregnancy With SMA

Sleep Apnea (1)

How Spinal Muscular Atrophy Can Affect Your Mental Health

Social Anxiety Disorder (1)

Making Friends and Overcoming Social Anxiety With SMA

Spinal Disc Herniation (Slipped Or Bulging Disc) (1)

Paraspinal Muscular Atrophy vs. Spinal Muscular Atrophy: What’s the Difference?

Spinal Stenosis (1)

Paraspinal Muscular Atrophy vs. Spinal Muscular Atrophy: What’s the Difference?

Spine Problems (1)

Paraspinal Muscular Atrophy vs. Spinal Muscular Atrophy: What’s the Difference?

Tay–Sachs Disease (1)

Tay-Sachs vs. Spinal Muscular Atrophy: Comparing Late-Onset Forms

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