Questions & Answers

Does scoliosis cause death

There was an article last November saying Zolgensma could be helpful for adults. Will they be doing a clinical trial on that soon? I have not seen anything further on it.

I am hurting all over but mostly my hands. I have never had my hands hert so badly. Is there any where in the Phoenix Valley that can give a massage for this type of MD. I know this will help and does not use any drugs to relive pain. Every where I have contacted has either gone out of business or moved to a different state. I am running out of leads. It could be that it is not posable to get that type of massage in Arizona. I don't want to take drugs for pain but this hurting so bad that I will… read more

I’m scheduled for my first appt with a specialist to address finding sma in my genetic testing markers when pregnant with my child at 12 weeks. Apparently I have type 4 and looking to get some truth about what this means for me. I’m 34. Anything specific I should ask in addition to the obvious questions?

Hi all. The advice is so conflicting on the topic of lifting weights. I'm a strong type 3. I can still feel good muscle in my arms and it exists (albeit not great) in my legs. Is lifting weights ok or are we to limit our exercise to lifting our own body weight only? I am on Evrysdi.

Please answer, I only use the bipap device when sleeping. Is it possible that I do not use gaseous breathing in the future?