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Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
210 questions
How Can A Person Living With SMA Reduce The Recurrence Of Bronchial Infections E.g. Bronchitis, Pneumonia?
A mySMAteam Member asked a question 💭

I have SMA and constantly suffer from bronchial infections due to post nasal drip and would really like to be able to manage it .

What's A Common Misconception About SMA?
A mySMAteam Member asked a question 💭
A mySMAteam Member

Not just SMA, but many disabilities...people assume that because you have a physical hinderance that you must also have a mental one as well and are often treated like a child. My experience with… read more

posted 18 hours ago
For Anyone That Uses A Power Wheelchair That Can Still Stand Up What Chair Do You Use Thats The Easiest To Stand From?
A mySMAteam Member asked a question 💭
A mySMAteam Member

I use a scooter outside and a walker inside. I stand up from my kitchen stools and my lifting recliner.

posted May 8
Hi, I Have Sma Type 3, From Few Days I Have Some Involuntar Facial And Finger Twitching, It Is Normal ? I Was Kinda Stressed Too
A mySMAteam Member asked a question 💭
A mySMAteam Member

I notice near time for next spinraza twitching returns, especially if I skip a treatment where 8 months in between.

posted 19 hours ago
What Tips Would You Share To Help With Seasonal Allergies?
A mySMAteam Member asked a question 💭
A mySMAteam Member

Jaz uporabljam Aerius 1x na dan, v času cvetenja pa 2x na dan in meni pomaga

posted May 6
Could You Share Any Dietary Changes And Tips That Have Helped With SMA?
A mySMAteam Member asked a question 💭
A mySMAteam Member

I have lots of digestive issues, and quite honestly until I joined this SMA team, none of my doctors ever mentioned SMA contributing to digestive issues despite seeing many specialist and as a result… read more

posted March 25
What Gene Causes SMA?
A mySMAteam Member asked a question 💭
Is SMA The Cause Of My Tiredness? It Is Hard Work Doing Anything And Walking. It Would Make Sense That That Is The Reason For My Tiredness.
A mySMAteam Member asked a question 💭
A mySMAteam Member

Ok Fred I will make more effort thanks

posted March 18
How Do Beverages With Caffeine Affect Your SMA?
A mySMAteam Member asked a question 💭
A mySMAteam Member

I honestly think I am immune from the effects of caffeine. I can literally fall asleep with a straw in my mouth after drinking half a mug of coffee ...but I started with coffee when I was very young… read more

posted March 21
I Was Just Denied By My Insurance My Request For A Hoyer Lift That We Are Going To Desperately Need Soon. What Should I Do?
A mySMAteam Member asked a question 💭

On Wednesday, February 7, 2024 at 03:49:33 PM EST, Disability Coordinator wrote
Good afternoon
I wanted to let you know that I was able to speak with the provider we requested the hoyer through and they informed me that insurance decline the request and are unable to provide you the equipment. If you have any questions let me know. I will begin looking to see if there is a place to get one on loan.
My Reply
I don't understand how I can be denied ...the environmental assessment I had… read more

A mySMAteam Member

Hi Eric, really sorry to hear that about,and yes it is ridiculous as you say. If they don't get you through refusal, they seem to get you with pricing which here in Oz is ridiculous! Trust your appeal… read more

posted February 10
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