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SMA

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Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Transfer To Shower Chair

Transfer To Shower Chair

Hi everyone. I have an urgent but somewhat embarrassing question to ask everyone For quite some time I have been desperately looking for attendant care. Currently my night attendant who has another client has been filling in for some time. My agency thinks they may have possibly found someone, but they are only willing to lift me with a hoyer lift. I have a hoyer lift, and while i have successfully used it to transfer from my wheelchair into bed, no one I have ever had out has figured out… read more

What Would Your Perfect Day Look Like?

What Would Your Perfect Day Look Like?

A mySMAteam Member said:

OMG, you have 4! You have a big heart. I adore your dog!
@A mySMAteam Member

posted 20 days ago

SMA Diagnosis

SMA Diagnosis

So after the neurologist gave me the SMA diagnosis in Jan, my mom remembered that we were sent to a genetic specialist when I was 4(1984); and SMA wasnt discussed at all.
Just curious if that is a common occurrence, or was SMA just not as well know in 1984?

A mySMAteam Member said:

Wow!

posted 24 days ago

What’s One Thing You Wish People Who Aren’t Living With SMA Could Understand?

What’s One Thing You Wish People Who Aren’t Living With SMA Could Understand?

A mySMAteam Member said:

Honestly,, I wish people would realize that y'all have problems with muscles and such NOT THAT YOU DON'T HAVE FEELINGS OR A BRAIN THAT WORKS. I wish doctors and nurses would see you the same as… read more

posted 27 days ago

What Is Your Morning Routine?

What Is Your Morning Routine?

A mySMAteam Member said:

I do some morning arm exercises before I get out of the bed. My mom helps me out of bed with my sure-hands. She then helps me get a shower, then I shave and brush my teeth. She then helps me get… read more

posted about 1 month ago
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