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My doctor I go SMA2. I was crying a lot. She told me the other people’s has it. She got other people’s to help me with it.
Here is a hug coming your way😀
I have type three and have noticed neck weakness too so I tried neck pillows and supports bur found this on Amazon https://www.amazon.com/dp/B07XKJVQ3W?psc=1&...
you can shape it any way you want… read more
My son has been diagnosed with a genetic pathology of VRK1 non5q SMA. It appears to be very rare with little to no information about it.
He has advanced atrophy of his right calf muscle and the… read more
hi i am Esther Geertsma from the netherlands and i and my mother and grandfather we had al 3 SMA-LED i look for people of the same and call with you
Smaiii 65yo male here, Noone else in family thankfully. Have a great day
Your independence is up to YOU! I'm 65 and I'm always going out. Such as concerts, sporting events, and dinners with family and friends. We all have choices. You're letting SMA define you. People with… read more
I keep my self busy with my dog. It help me in a lot way. We got outside he listen to me. When I tell him to stop. He will check on me.
Wheelchairs batteries just about completely dead. Put in for new batteries like a month ago. Are sitting in NuMotions storage somewhere. Earliest can come to install...September 1st. Tell them is emergency, batteries critical...spent entire day stuck at a table because batteries dead on Tuesday. Sorry...no one can come out until September 1st. What????😡
So, what is going on with NuMotion? I put in for replacement hospital bed remote in early July...they sent wrong remote...still not send right… read more
I don’t know any one from your place. I get my from Richland WA. I will help you out.O.K. That is what friend are for to help other in need.
I am having a very hard time trying to find anyone capable or willing to sew a custom wheelchair seat cover for my wheelchair. Looking for someone who can make a cover similar to this
https://www.instructables.com/Wheelchair-Seat-C...
With a few minor changes like a detachable bag
My mother use to sew my covers before her passing. I made my last two seat covers including the one pictured, but each one took me nearly two years to sew as I can't operate a descent sewing machine and had to… read more
@A mySMAteam Member Thank You ...i actually did try one local upholstery shop but they were not even in the least bit interested in such a small job. i will have to check out some farther away.
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