For those of you that are single...What do you do to get sexual relief? I know it's a bit of a personal question, but as I get weaker and lose the use of my hands, I'm struggling to get this taken care
Hi, I wonder how girls go to the toilet in places where there is no hoist and there is only one carer. I (or at least my carers) find it difficult to take of pants, because I cant lift myself.
My doctor believes I have SMA Type 3. Recently, I have discovered I have tremors. I think I've always had them, but didn't pay attention to them, blowing them off due to being hungry. However, I've also noticed that I have them when I'm not hungry. I don't always have them and they are not violent, but are annoying at times. 😆
Is this one of the many symptoms of SMA Type 3?
I recently bought my first desktop computer and I am so excited! I am currently using the magic trackpad, the built-in on screen keyboard, and voice control. Is there anything else I could be using to make things more efficient? I am on my computer pretty much all day, and I'm always looking for ways to be more productive while simultaneously reducing my fatigue.
I'll soon start taking risdiplam and I didn't get surgery (don't know if I still can get it).
So I was wondering : given that scoliosis in sma is due to muscle weakness, did anyone of you notice some stabilization of scoliosis while on the drug?
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