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Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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What Is The Average Life Expectancy For People Who Have Sma Type 2?
A mySMAteam Member asked a question 💭
posted 16 hours ago
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What SMA Symptom Do You Have That You Didn’t Expect?
A mySMAteam Member asked a question 💭
posted 5 days ago
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A mySMAteam Member

My doctor I go SMA2. I was crying a lot. She told me the other people’s has it. She got other people’s to help me with it.

posted 3 days ago
Just To Tell We Are Very Normal People. With Kind Heart
A mySMAteam Member asked a question 💭
posted September 16
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A mySMAteam Member

Here is a hug coming your way😀

posted 5 days ago
I Need An Assistive Devices/equipments For Control My Neck Movement, Please Suggest Some For Me
A mySMAteam Member asked a question 💭
posted September 13
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A mySMAteam Member

I have type three and have noticed neck weakness too so I tried neck pillows and supports bur found this on Amazon https://www.amazon.com/dp/B07XKJVQ3W?psc=1&...
you can shape it any way you want… read more

posted 5 days ago
I Would Like To Give Everybody’s A Hug. Remember We Are Great People’s With Love In Are HEART.
A mySMAteam Member asked a question 💭
posted September 9
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A mySMAteam Member

My son has been diagnosed with a genetic pathology of VRK1 non5q SMA. It appears to be very rare with little to no information about it.

He has advanced atrophy of his right calf muscle and the… read more

posted September 16
Why Here Has SMA-LED
A mySMAteam Member asked a question 💭

hi i am Esther Geertsma from the netherlands and i and my mother and grandfather we had al 3 SMA-LED i look for people of the same and call with you

posted September 8
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A mySMAteam Member

Smaiii 65yo male here, Noone else in family thankfully. Have a great day

posted September 13
I Am 68 And Have Spinal Muscular Atrophy. How Do You Live After You Lose Your Independence?
A mySMAteam Member asked a question 💭
posted August 26
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A mySMAteam Member

Your independence is up to YOU! I'm 65 and I'm always going out. Such as concerts, sporting events, and dinners with family and friends. We all have choices. You're letting SMA define you. People with… read more

posted September 7
What's One Natural Remedy That's Helped In Managing Your SMA?
A mySMAteam Member asked a question 💭
posted August 21
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A mySMAteam Member

I keep my self busy with my dog. It help me in a lot way. We got outside he listen to me. When I tell him to stop. He will check on me.

posted September 13
Is There Another Big Reliable Wheelchair Supplier, Service And Repair Company Serving Maryland Other Then NuMotion?
A mySMAteam Member asked a question 💭

Wheelchairs batteries just about completely dead. Put in for new batteries like a month ago. Are sitting in NuMotions storage somewhere. Earliest can come to install...September 1st. Tell them is emergency, batteries critical...spent entire day stuck at a table because batteries dead on Tuesday. Sorry...no one can come out until September 1st. What????😡

So, what is going on with NuMotion? I put in for replacement hospital bed remote in early July...they sent wrong remote...still not send right… read more

posted August 14
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A mySMAteam Member

I don’t know any one from your place. I get my from Richland WA. I will help you out.O.K. That is what friend are for to help other in need.

posted August 16
Does Anyone Know Someone Willing To Sew Custom Wheelchair Seat Cover? Willing To Pay.
A mySMAteam Member asked a question 💭

I am having a very hard time trying to find anyone capable or willing to sew a custom wheelchair seat cover for my wheelchair. Looking for someone who can make a cover similar to this
https://www.instructables.com/Wheelchair-Seat-C...
With a few minor changes like a detachable bag
My mother use to sew my covers before her passing. I made my last two seat covers including the one pictured, but each one took me nearly two years to sew as I can't operate a descent sewing machine and had to… read more

posted August 13
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A mySMAteam Member

@A mySMAteam Member Thank You ...i actually did try one local upholstery shop but they were not even in the least bit interested in such a small job. i will have to check out some farther away.

posted September 13
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