SMA Questions and Answers | mySMAteam

Connect with others who understand.

sign up Log in
Resources
About mySMAteam
Powered By

Questions & Answers

Get practical advice and insights from people who understand

Don't see your question? Ask one here
Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
195 questions
How Do Beverages With Caffeine Affect Your SMA?
A mySMAteam Member asked a question 💭
A mySMAteam Member

sma has a side affect for many or us, anxiety..Caffeine can heighten anxiety, so if feeling anxious then tone down on the caffeine. Avoid all soda's, they are all horribly bad for 'everyone'...I'm… read more

posted 3 days ago
I Was Just Denied By My Insurance My Request For A Hoyer Lift That We Are Going To Desperately Need Soon. What Should I Do?
A mySMAteam Member asked a question 💭

On Wednesday, February 7, 2024 at 03:49:33 PM EST, Disability Coordinator wrote
Good afternoon
I wanted to let you know that I was able to speak with the provider we requested the hoyer through and they informed me that insurance decline the request and are unable to provide you the equipment. If you have any questions let me know. I will begin looking to see if there is a place to get one on loan.
__
My Reply
_
I don't understand how I can be denied ...the environmental assessment I had… read more

A mySMAteam Member

Hi Eric, really sorry to hear that about,and yes it is ridiculous as you say. If they don't get you through refusal, they seem to get you with pricing which here in Oz is ridiculous! Trust your appeal… read more

posted February 10
Treatment Kab Aayega Sma Type 3 Ka
A mySMAteam Member asked a question 💭
What Lessons From Your SMA Experience Are You Applying In 2024?
A mySMAteam Member asked a question 💭
A mySMAteam Member

To be grateful for what I have achieved by over coming huge challenges.

posted February 5
How Does The Cold Affect Your SMA?
A mySMAteam Member asked a question 💭
A mySMAteam Member

I move to South America for the weather and cost of living. We do not do well in cold!

posted February 5
Sir If Any Updates Regarding The Complete Cure Of SMA Please Kindly Mail To My Account. "Service To Man Is Service To God"
A mySMAteam Member asked a question 💭
What SMA Symptoms Keep You Up At Night?
A mySMAteam Member asked a question 💭
A mySMAteam Member

Thanks for making note of the Evrysdi, causing the gassiness. I spoke with my neurologist about it, and he said it was more likely the Ozempic then it was the ever see but I’ve been on the Ozempic… read more

posted January 18
How Many People Are With SMA LED Here?
A mySMAteam Member asked a question 💭
A mySMAteam Member

Hi! My daughter has SMA LED

posted December 17, 2023
What's On Your Holiday Wish List That Could Improve Your Life With SMA?
A mySMAteam Member asked a question 💭
A mySMAteam Member

Friends , family and attendants to all be healthy. I am in constant fear of someone falling ill or current health conditions causing greater havoc. Sadly, that is not something can buy.

posted December 23, 2023
What Aspects Of SMA Are You Grateful For And Worried About Lately?
A mySMAteam Member asked a question 💭
A mySMAteam Member

Stay positive! Remember, one day at a time!!

posted December 9, 2023
Continue with Facebook
Continue with Google
Your privacy is our priority. By continuing, you accept our Terms of use and Privacy policy.
Already a Member? Log in