Connect with others who understand.

sign up log in
About mySMAteam

SMA in the News

Nobody loves going to the emergency room (ER). Odds are, something bad happened that requires...
Posted 01/20/2022

Emergency Room Advice for People With SMA

Nobody loves going to the emergency room (ER). Odds are, something bad happened that requires...
Posted 01/20/2022
Corrective surgery for scoliosis in children with spinal muscular atrophy (SMA) type 1 can lead...
Posted 01/18/2022

Scoliosis Surgery in Kids With SMA Can Cause Serious Complications, Research Finds

Corrective surgery for scoliosis in children with spinal muscular atrophy (SMA) type 1 can lead...
Posted 01/18/2022
Having a good doctor you can trust is a vital aspect of health care for everyone, but it’s...
Posted 01/13/2022

What Makes a Good Doctor for People With SMA?

Having a good doctor you can trust is a vital aspect of health care for everyone, but it’s...
Posted 01/13/2022
Andrew and Henry DeYoung, brothers with spinal muscular atrophy (SMA), completed doctoral theses...
Posted 01/11/2022

Brothers With SMA Complete Their Doctorates Weeks Apart

Andrew and Henry DeYoung, brothers with spinal muscular atrophy (SMA), completed doctoral theses...
Posted 01/11/2022
Nusinersen, sold as Spinraza, has been shown to prevent decline in breathing abilities in some...
Posted 01/06/2022

Breathing Remains Stable for Infants With SMA Type 1 Taking Spinraza, Study Shows

Nusinersen, sold as Spinraza, has been shown to prevent decline in breathing abilities in some...
Posted 01/06/2022
In a recent webinar, four young adults discussed transitioning from pediatric to adult health care while living with disabilities.
Posted 01/04/2022

Young Adults With Disabilities Cite Pitfalls in Transitioning From Pediatric to Adult Care

In a recent webinar, four young adults discussed transitioning from pediatric to adult health care while living with disabilities.
Posted 01/04/2022
A recent study found that a wearable cyborg limb can be used to help people with neuromuscular disorders such as spinal muscular atrophy...
Posted 12/30/2021

Wearable Cyborg Limb Shows Promise as Walking Treatment for SMA

A recent study found that a wearable cyborg limb can be used to help people with neuromuscular disorders such as spinal muscular atrophy...
Posted 12/30/2021
A new study highlights the benefits of adaptive sports to improve the physical and psychological...
Posted 12/29/2021

Wheelchair Hockey and Other Adaptive Sports Score Big Health Benefits for People With SMA

A new study highlights the benefits of adaptive sports to improve the physical and psychological...
Posted 12/29/2021
Over the years I have pieced together a few strategies for dealing with the cold season when...
Posted 12/28/2021

Winter Safety Tips for People With SMA

Over the years I have pieced together a few strategies for dealing with the cold season when...
Posted 12/28/2021
With a newly earned degree in speech pathology, I began my career as a school-based speech...
Posted 12/23/2021

The Challenges of Working With SMA

With a newly earned degree in speech pathology, I began my career as a school-based speech...
Posted 12/23/2021
SMA News

Become a Subscriber

Get the latest news about spinal muscular atrophy sent to your inbox.

Not now, thanks

Privacy policy
SMA News

Thank you for signing up.

close