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SMA in the News

Researchers are studying a potential new treatment called taldefgrobep alfa for spinal muscular...
Posted 08/17/2022

Study Recruiting for New Add-On SMA Treatment

Researchers are studying a potential new treatment called taldefgrobep alfa for spinal muscular...
Posted 08/17/2022
New data shows that risdiplam (sold as Evrysdi) helps most infants with spinal muscular atrophy...
Posted 06/15/2022

Long-Term Data: Children With Type 1 SMA Keep Gaining Motor Skills After 3 Years on Evrysdi

New data shows that risdiplam (sold as Evrysdi) helps most infants with spinal muscular atrophy...
Posted 06/15/2022
Nusinersen, sold as Spinraza, is approved for both adults and children with spinal muscular...
Posted 04/13/2022

Nusinersen Improves Motor Function, Quality of Life in Adults With SMA, Studies Find

Nusinersen, sold as Spinraza, is approved for both adults and children with spinal muscular...
Posted 04/13/2022
Choosing a gaming console could be a bit tricky when it comes to all the things spinal muscular...
Posted 03/16/2022

Gaming With SMA: Choosing a Gaming Platform

Choosing a gaming console could be a bit tricky when it comes to all the things spinal muscular...
Posted 03/16/2022
The researchers who discovered and developed the spinal muscular atrophy (SMA) treatment Evrysdi...
Posted 03/09/2022

Evrysdi Development Team Wins Drug Discovery Award for Oral SMA Treatment

The researchers who discovered and developed the spinal muscular atrophy (SMA) treatment Evrysdi...
Posted 03/09/2022
As we all know, spinal muscular atrophy (SMA) is a neuromuscular disease caused by a mutation in...
Posted 03/02/2022

Living as a Superhero

As we all know, spinal muscular atrophy (SMA) is a neuromuscular disease caused by a mutation in...
Posted 03/02/2022
A recent study has found that combining Zolgensma and Spinraza does not improve motor or...
Posted 02/23/2022

Spinraza Alone May Be Better Than Combining It With Zolgensma To Treat SMA Type 1

A recent study has found that combining Zolgensma and Spinraza does not improve motor or...
Posted 02/23/2022
The TD Pilot leverages accessibility features, such as eye tracking, from the newest iPad...
Posted 02/16/2022

The Eyes Have It: TD Pilot Harnesses iPadOS 15, Lets Users Control Device With Their Eyes

The TD Pilot leverages accessibility features, such as eye tracking, from the newest iPad...
Posted 02/16/2022
Just thinking about dating is an absolute monster of a thought when spinal muscular atrophy (SMA)...
Posted 02/09/2022

Dating With SMA: Love Is Out There, But Finding It Takes Strength

Just thinking about dating is an absolute monster of a thought when spinal muscular atrophy (SMA)...
Posted 02/09/2022
Soon after my diagnosis of spinal muscular atrophy (SMA) type 3, I decided to start a family...
Posted 02/02/2022

Pregnancy and Childbirth With SMA: My Experiences

Soon after my diagnosis of spinal muscular atrophy (SMA) type 3, I decided to start a family...
Posted 02/02/2022
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