Get the latest SMA news
SMA in the News
Emergency Room Advice for People With SMA
Nobody loves going to the emergency room (ER). Odds are, something bad happened that requires...
Posted 01/20/2022
Scoliosis Surgery in Kids With SMA Can Cause Serious Complications, Research Finds
Corrective surgery for scoliosis in children with spinal muscular atrophy (SMA) type 1 can lead...
Posted 01/18/2022
What Makes a Good Doctor for People With SMA?
Having a good doctor you can trust is a vital aspect of health care for everyone, but it’s...
Posted 01/13/2022
Brothers With SMA Complete Their Doctorates Weeks Apart
Andrew and Henry DeYoung, brothers with spinal muscular atrophy (SMA), completed doctoral theses...
Posted 01/11/2022
Breathing Remains Stable for Infants With SMA Type 1 Taking Spinraza, Study Shows
Nusinersen, sold as Spinraza, has been shown to prevent decline in breathing abilities in some...
Posted 01/06/2022
Young Adults With Disabilities Cite Pitfalls in Transitioning From Pediatric to Adult Care
In a recent webinar, four young adults discussed transitioning from pediatric to adult health care while living with disabilities.
Posted 01/04/2022
Wearable Cyborg Limb Shows Promise as Walking Treatment for SMA
A recent study found that a wearable cyborg limb can be used to help people with neuromuscular disorders such as spinal muscular atrophy...
Posted 12/30/2021
Wheelchair Hockey and Other Adaptive Sports Score Big Health Benefits for People With SMA
A new study highlights the benefits of adaptive sports to improve the physical and psychological...
Posted 12/29/2021
Winter Safety Tips for People With SMA
Over the years I have pieced together a few strategies for dealing with the cold season when...
Posted 12/28/2021
The Challenges of Working With SMA
With a newly earned degree in speech pathology, I began my career as a school-based speech...
Posted 12/23/2021
