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Study Recruiting for New Add-On SMA Treatment
Researchers are studying a potential new treatment called taldefgrobep alfa for spinal muscular...
Posted 08/17/2022
Long-Term Data: Children With Type 1 SMA Keep Gaining Motor Skills After 3 Years on Evrysdi
New data shows that risdiplam (sold as Evrysdi) helps most infants with spinal muscular atrophy...
Posted 06/15/2022
Nusinersen Improves Motor Function, Quality of Life in Adults With SMA, Studies Find
Nusinersen, sold as Spinraza, is approved for both adults and children with spinal muscular...
Posted 04/13/2022
Gaming With SMA: Choosing a Gaming Platform
Choosing a gaming console could be a bit tricky when it comes to all the things spinal muscular...
Posted 03/16/2022
Evrysdi Development Team Wins Drug Discovery Award for Oral SMA Treatment
The researchers who discovered and developed the spinal muscular atrophy (SMA) treatment Evrysdi...
Posted 03/09/2022
Living as a Superhero
As we all know, spinal muscular atrophy (SMA) is a neuromuscular disease caused by a mutation in...
Posted 03/02/2022
Spinraza Alone May Be Better Than Combining It With Zolgensma To Treat SMA Type 1
A recent study has found that combining Zolgensma and Spinraza does not improve motor or...
Posted 02/23/2022
The Eyes Have It: TD Pilot Harnesses iPadOS 15, Lets Users Control Device With Their Eyes
The TD Pilot leverages accessibility features, such as eye tracking, from the newest iPad...
Posted 02/16/2022
Dating With SMA: Love Is Out There, But Finding It Takes Strength
Just thinking about dating is an absolute monster of a thought when spinal muscular atrophy (SMA)...
Posted 02/09/2022
Pregnancy and Childbirth With SMA: My Experiences
Soon after my diagnosis of spinal muscular atrophy (SMA) type 3, I decided to start a family...
Posted 02/02/2022
