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SMA in the News

Pregnancy and Childbirth With SMA: My Experiences
Soon after my diagnosis of spinal muscular atrophy (SMA) type 3, I decided to start a family whil...
Posted 02/02/2022
Pregnancy and Childbirth With SMA: My Experiences
Soon after my diagnosis of spinal muscular atrophy (SMA) type 3, I decided to start a family whil...
Posted 02/02/2022
Spinraza Boosts Fine Motor Skills in Children With SMA Type 2, Study Finds
Children with spinal muscular atrophy type 2 saw a marked improvement in hand and finger dexterit...
Posted 01/26/2022
Spinraza Boosts Fine Motor Skills in Children With SMA Type 2, Study Finds
Children with spinal muscular atrophy type 2 saw a marked improvement in hand and finger dexterit...
Posted 01/26/2022
Emergency Room Advice for People With SMA
Nobody loves going to the emergency room (ER). Odds are, something bad happened that requires imm...
Posted 01/20/2022
Emergency Room Advice for People With SMA
Nobody loves going to the emergency room (ER). Odds are, something bad happened that requires imm...
Posted 01/20/2022
Scoliosis Surgery in Kids With SMA Can Cause Serious Complications, Research Finds
Nusinersen, sold as Spinraza, is a common treatment for people with SMA — and to work, it needs t...
Posted 01/18/2022
Scoliosis Surgery in Kids With SMA Can Cause Serious Complications, Research Finds
Nusinersen, sold as Spinraza, is a common treatment for people with SMA — and to work, it needs t...
Posted 01/18/2022
What Makes a Good Doctor for People With SMA?
Having a good doctor you can trust is a vital aspect of health care for everyone, but it’s especi...
Posted 01/13/2022
What Makes a Good Doctor for People With SMA?
Having a good doctor you can trust is a vital aspect of health care for everyone, but it’s especi...
Posted 01/13/2022
Brothers With SMA Complete Their Doctorates Weeks Apart
Achieving a doctorate is an exceptional accomplishment in its own right. But brothers Henry and A...
Posted 01/11/2022
Brothers With SMA Complete Their Doctorates Weeks Apart
Achieving a doctorate is an exceptional accomplishment in its own right. But brothers Henry and A...
Posted 01/11/2022
Breathing Remains Stable for Infants With SMA Type 1 Taking Spinraza, Study Shows
Infants with SMA type 1 treated with nusinersen can maintain the same level of breathing or respi...
Posted 01/06/2022
Breathing Remains Stable for Infants With SMA Type 1 Taking Spinraza, Study Shows
Infants with SMA type 1 treated with nusinersen can maintain the same level of breathing or respi...
Posted 01/06/2022
Young Adults With Disabilities Cite Pitfalls in Transitioning From Pediatric to Adult Care
In a recent webinar, four young adults discussed transitioning from pediatric to adult health car...
Posted 01/04/2022
Young Adults With Disabilities Cite Pitfalls in Transitioning From Pediatric to Adult Care
In a recent webinar, four young adults discussed transitioning from pediatric to adult health car...
Posted 01/04/2022
Wearable Cyborg Limb Shows Promise as Walking Treatment for SMA
A recent study found that a wearable cyborg limb can be used to help people with neuromuscular di...
Posted 12/30/2021
Wearable Cyborg Limb Shows Promise as Walking Treatment for SMA
A recent study found that a wearable cyborg limb can be used to help people with neuromuscular di...
Posted 12/30/2021
Wheelchair Hockey and Other Adaptive Sports Score Big Health Benefits for People With SMA
The world of athletic recreation is becoming increasingly accessible for people living with disab...
Posted 12/29/2021
Wheelchair Hockey and Other Adaptive Sports Score Big Health Benefits for People With SMA
The world of athletic recreation is becoming increasingly accessible for people living with disab...
Posted 12/29/2021
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