Soon after my diagnosis of spinal muscular atrophy (SMA) type 3, I decided to start a family whil...

Spinraza (nusinersen) improves fine manual dexterity and gross motor skills in children with spin...

Nobody loves going to the emergency room (ER). Odds are, something bad happened that requires imm...

Corrective surgery for scoliosis in children with spinal muscular atrophy (SMA) type 1 can lead t...

Having a good doctor you can trust is a vital aspect of health care for everyone, but it’s especi...

Andrew and Henry DeYoung, brothers with spinal muscular atrophy (SMA), completed doctoral theses ...

Nusinersen, sold as Spinraza, has been shown to prevent decline in breathing abilities in some in...

In a recent webinar, four young adults discussed transitioning from pediatric to adult health car...

A recent study found that a wearable cyborg limb can be used to help people with neuromuscular di...

A new study highlights the benefits of adaptive sports to improve the physical and psychological ...