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SMA in the News

Soon after my diagnosis of spinal muscular atrophy (SMA) type 3, I decided to start a family...
Posted 02/02/2022

Pregnancy and Childbirth With SMA: My Experiences

Soon after my diagnosis of spinal muscular atrophy (SMA) type 3, I decided to start a family...
Posted 02/02/2022
Spinraza (nusinersen) improves fine manual dexterity and gross motor skills in children with...
Posted 01/26/2022

Spinraza Boosts Fine Motor Skills in Children With SMA Type 2, Study Finds

Spinraza (nusinersen) improves fine manual dexterity and gross motor skills in children with...
Posted 01/26/2022
Nobody loves going to the emergency room (ER). Odds are, something bad happened that requires...
Posted 01/20/2022

Emergency Room Advice for People With SMA

Nobody loves going to the emergency room (ER). Odds are, something bad happened that requires...
Posted 01/20/2022
Corrective surgery for scoliosis in children with spinal muscular atrophy (SMA) type 1 can lead...
Posted 01/18/2022

Scoliosis Surgery in Kids With SMA Can Cause Serious Complications, Research Finds

Corrective surgery for scoliosis in children with spinal muscular atrophy (SMA) type 1 can lead...
Posted 01/18/2022
Having a good doctor you can trust is a vital aspect of health care for everyone, but it’s...
Posted 01/13/2022

What Makes a Good Doctor for People With SMA?

Having a good doctor you can trust is a vital aspect of health care for everyone, but it’s...
Posted 01/13/2022
Andrew and Henry DeYoung, brothers with spinal muscular atrophy (SMA), completed doctoral theses...
Posted 01/11/2022

Brothers With SMA Complete Their Doctorates Weeks Apart

Andrew and Henry DeYoung, brothers with spinal muscular atrophy (SMA), completed doctoral theses...
Posted 01/11/2022
Nusinersen, sold as Spinraza, has been shown to prevent decline in breathing abilities in some...
Posted 01/06/2022

Breathing Remains Stable for Infants With SMA Type 1 Taking Spinraza, Study Shows

Nusinersen, sold as Spinraza, has been shown to prevent decline in breathing abilities in some...
Posted 01/06/2022
In a recent webinar, four young adults discussed transitioning from pediatric to adult health care while living with disabilities.
Posted 01/04/2022

Young Adults With Disabilities Cite Pitfalls in Transitioning From Pediatric to Adult Care

In a recent webinar, four young adults discussed transitioning from pediatric to adult health care while living with disabilities.
Posted 01/04/2022
A recent study found that a wearable cyborg limb can be used to help people with neuromuscular disorders such as spinal muscular atrophy...
Posted 12/30/2021

Wearable Cyborg Limb Shows Promise as Walking Treatment for SMA

A recent study found that a wearable cyborg limb can be used to help people with neuromuscular disorders such as spinal muscular atrophy...
Posted 12/30/2021
A new study highlights the benefits of adaptive sports to improve the physical and psychological...
Posted 12/29/2021

Wheelchair Hockey and Other Adaptive Sports Score Big Health Benefits for People With SMA

A new study highlights the benefits of adaptive sports to improve the physical and psychological...
Posted 12/29/2021
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