I have SMA and constantly suffer from bronchial infections due to post nasal drip and would really like to be able to manage it .
So after the neurologist gave me the SMA diagnosis in Jan, my mom remembered that we were sent to a genetic specialist when I was 4(1984); and SMA wasnt discussed at all.
Just curious if that is a common occurrence, or was SMA just not as well know in 1984?
Wow!
I suffer atrophy from a stroke for which the medical industry does nothing to help me. I am always in bed. I would like to have more support as I have almost none at all now. I do not wish to insult members who have SMA from genetic origin. I am feeling we have much in common and I sincerely need friends. I apologize for misunderstanding. I hope I can find acceptance here.
I have SMA3
I’m 36 and was diagnosed at age 5. I just had my first baby almost 5 months ago. It’s tough. So worth it but I’m struggling during the day with him due to lack of strength and covid… read more
Yes, at 8 months old. His legs started moving in 2 days. He can now swallow, stand independently, walk short distances, and started riding a bike with training wheels. My general answer is to reply… read more