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SMA Diagnosis
So after the neurologist gave me the SMA diagnosis in Jan, my mom remembered that we were sent to a genetic specialist when I was 4(1984); and SMA wasnt discussed at all.
Just curious if that is a common occurrence, or was SMA just not as well know in 1984?
Wow!
Im not surprised, Historically SMA was hard to diagnose. I got diagnosed in 1983 at 20 years old. Every doctor I went to prior to that, either said there was nothing wrong with me or that they couldn’t find anything.
Very common! My brother was diagnosed with Duchene and they told my mom that I had werdnig Hoffmann. I am 57 and just got diagnosed with SMA 3only 3 years ago. And turns out my brother didn't have Duchene. That was in 1972.
I’ve Had Scoliosis With A Pelvic Tip As An Early Teenager, And Was Diagnosed With SMA 4 Only When I Complained Of Weakness In My 50s.
How Long Do People With Sma (spinal Muscular Atrophy) Stay In The Hospital?
Is Anyone Planning On Going To The Next Cure SMA Conference? It’s In CA From June 26-29. Scholarships Are Available From Cure SMA.
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