Anyone With Type 1 Sma Child Who Got Zolgensma?
Yes, at 8 months old. His legs started moving in 2 days. He can now swallow, stand independently, walk short distances, and started riding a bike with training wheels. My general answer is to reply, “How quickly can my child get this?” Time is so important. Many children that are getting zolgensma at birth are hitting typical milestones with sitting, standing, walking.
I’ve Had Scoliosis With A Pelvic Tip As An Early Teenager, And Was Diagnosed With SMA 4 Only When I Complained Of Weakness In My 50s.
I Have SMA Type 3 And Have A Torn Rotator Cuff. I Am Wondering If Anyone Has Dealt With This Specific Injury While Also Having SMA?
Even Though You (or A Loved One) Suffer From SMA, Would You Change The Life You Have?
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