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How can a person living with SMA reduce the recurrence of bronchial infections e.g. bronchitis, pneumonia?
I have SMA and constantly suffer from bronchial infections due to post nasal drip and would really like to be able to manage it .
Bipap at night with settings you can handle and that will help you sleep through the night. Good suction, coughalator and vest treatments morning and night(this is all what we do for my son) and I started a tongue exercise last year. After we finish mo4ning and night machines, he sticks his tongue out as far as he can, then tries to touch his nose, chin, fold it, then a whistle.
The whistle is a breathing exercise I came up with when he first got diagnosed 13.5 years ago. Along with bubbles and feathers, the blowing helps strengthen the lungs. The tongue exercise helps strengthen the epiglottis to prevent aspirations.
Again, this is what works for us, and I believe it's made all the difference. Also regular rolling, not being in anyone position for too long.
I have sma and rotary scoliosis I have never in my life been able to run I have never been able to stand up without using my hands I fall
After 2 days of feeling good and being very active today I am very pained and tired is this normal
Has any parent's child with SMA have excessive secretions to the point it affects breathing, leading to suction and oxygen drops?
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