treatment with evrysdi after zolgensma shows benefit for sma type 1 and spinal muscular atrophy | mySMAteam

Connect with others who understand.

sign up Log in
Resources
About mySMAteam
Powered By
Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "treatment with evrysdi after zolgensma shows benefit for sma type 1"

reset
Gene Therapy
A mySMAteam Member asked a question 💭

I was wondering is there anyone here that knows someone who or have had zolgensma gene therapy?

A mySMAteam Member

I believe every child is different. The child that I know of that received zolgensma is also receiving another treatment (Risdiplam) as well. She was a type 1 who is now able to lift her leg over her… read more

Anyone With Type 1 Sma Child Who Got Zolgensma?
A mySMAteam Member asked a question 💭
A mySMAteam Member

Yes, at 8 months old. His legs started moving in 2 days. He can now swallow, stand independently, walk short distances, and started riding a bike with training wheels. My general answer is to reply… read more

Which Is Better For Treating Sma Disease, Is Evrysdi Or Spinraza?
A mySMAteam Member asked a question 💭

Which is better for treating sma disease, is Evrysdi or Spinraza?

•
View reactions
Is There Any One With Type 1 And Get Zolgensma.
A mySMAteam Member asked a question 💭
Treatment Kab Aayega Sma Type 3 Ka
A mySMAteam Member asked a question 💭
Medicare, Medicaid, Medicare Advantage,Medicare Special Needs Plans,glasses...???
A mySMAteam Member asked a question 💭

One day last week I asked my attendant as usual to clean my eye glasses before putting them on me. They were still really foggy...as an artist , I really rely on my vision, so he cleaned them again . Still foggy, tried glass cleaner, lens cleaner etc. After an argument in which I insisted that I was not in fact going blind, I went to the eye glass store and discovered that I need new glasses...the scratch guard wore off my glasses...now everything is foggy. I thought scratch guard was… read more

A mySMAteam Member

Thanks. I know there are Medicare Advantage plans that cover eye glasses...but apparently regular Medicare does not and it appears Medicaid only to age 21. The problem is I am not sure if my… read more

Any Parents Of Kids Who Have Received The Zoolgensma Treatment?
A mySMAteam Member asked a question 💭
Can Adult Be Treated With Zolgensma?
A mySMAteam Member asked a question 💭
I Would Like To Know If Anyone Has Used The Drug Evrysdi / Risdiplam? For Treatment Of Smalled1
A mySMAteam Member asked a question 💭
•
View reactions
Hi, I Have Sma Type 3, From Few Days I Have Some Involuntar Facial And Finger Twitching, It Is Normal ? I Was Kinda Stressed Too
A mySMAteam Member asked a question 💭