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Gene Therapy

Gene Therapy

I was wondering is there anyone here that knows someone who or have had zolgensma gene therapy?

A mySMAteam Member said:

I believe every child is different. The child that I know of that received zolgensma is also receiving another treatment (Risdiplam) as well. She was a type 1 who is now able to lift her leg over her crib railing. You can follow her on Everly's Hope on Facebook for more updates.

posted 6 months ago
A mySMAteam Member said:

Hello, I was wondering because my daughter received zolgensma and was curious how a child responded after the first 3 months.

posted 7 months ago
A mySMAteam Member said:

Here in the state of Arkansas I know of a little one who recently received Zolgenzma and insurance covered the injection. The child is now also receiving Spinraza.

posted 7 months ago
A mySMAteam Member said:

No I sure do not. But I have heard it works. It costs $2.1 million dollars. Prayers are with you 🙏

posted 8 months ago
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