I was wondering is there anyone here that knows someone who or have had zolgensma gene therapy?
I believe every child is different. The child that I know of that received zolgensma is also receiving another treatment (Risdiplam) as well. She was a type 1 who is now able to lift her leg over her crib railing. You can follow her on Everly's Hope on Facebook for more updates.
Hello, I was wondering because my daughter received zolgensma and was curious how a child responded after the first 3 months.
Here in the state of Arkansas I know of a little one who recently received Zolgenzma and insurance covered the injection. The child is now also receiving Spinraza.