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Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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Can A 23 Year Old Take The At Home Drug For SMA?

Can A 23 Year Old Take The At Home Drug For SMA?

My son is almost 23 and an SMA Type 1. He has not wanted to do the spinraza but we are interested in the at home drug but not sure if people his age have taken it and what the outcomes have been. Any info would be much appreciated!

A mySMAteam Member said:

Hi 👋🏼. I’m 33 years old and take Evrysdi the oral medication for SMA. It is approved for all ages and all stages of SMA. I have been on it for 3 months. I feel my side effects have been minimal… read more

posted 7 months ago