Can someone of this group tell me something about myostatin inhibitors for people with SMA?
There was an article last November saying Zolgensma could be helpful for adults. Will they be doing a clinical trial on that soon? I have not seen anything further on it.
Wow, this is the first I've read of this. Can anybody confirm?
How common or likely is it for people with SMA to die from aspirating?
I think it's best to ask your neurologist.
I have SMA3
Iβm 36 and was diagnosed at age 5. I just had my first baby almost 5 months ago. Itβs tough. So worth it but Iβm struggling during the day with him due to lack of strength and covidβ¦ read more