winter safety tips for people with sma and spinal muscular atrophy | mySMAteam

Connect with others who understand.

sign up Log in
Quick Links
Q&A Treatments A-Z Help Center Community guidelines Crisis Accessibility
Resources
Community Diagnosis & Information Managing Your Condition Treating SMA News SMA Videos All Resources
About mySMAteam
What is mySMAteam Terms of use Privacy policy
Powered By
Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "winter safety tips for people with sma"

reset
Top 5 searches:
Hi, I Have Sma Type 3, From Few Days I Have Some Involuntar Facial And Finger Twitching, It Is Normal ? I Was Kinda Stressed Too
A mySMAteam Member asked a question πŸ’­
β€’
Be the first to like/hug
Is Ridisplam Effective For SMA-LED1 Disease?
A mySMAteam Member asked a question πŸ’­
β€’
Be the first to like/hug
What Is SMA-LED? Read Article...
What Gene Causes SMA?
A mySMAteam Member asked a question πŸ’­
β€’
Be the first to like/hug
Clinical Trials
A mySMAteam Member asked a question πŸ’­

Can someone of this group tell me something about myostatin inhibitors for people with SMA?

β€’
View reactions
Can Aspiration Be Fatal
A mySMAteam Member asked a question πŸ’­

How common or likely is it for people with SMA to die from aspirating?

β€’
Be the first to like/hug
A mySMAteam Member

I think it's best to ask your neurologist.

Treatment Kab Aayega Sma Type 3 Ka
A mySMAteam Member asked a question πŸ’­
β€’
Be the first to like/hug
Anyone With Type 1 Sma Child Who Got Zolgensma?
A mySMAteam Member asked a question πŸ’­
β€’
Be the first to like/hug
A mySMAteam Member

Yes, at 8 months old. His legs started moving in 2 days. He can now swallow, stand independently, walk short distances, and started riding a bike with training wheels. My general answer is to reply… read more

Which Is Better For Treating Sma Disease, Is Evrysdi Or Spinraza?
A mySMAteam Member asked a question πŸ’­

Which is better for treating sma disease, is Evrysdi or Spinraza?

β€’
View reactions
Sir If Any Updates Regarding The Complete Cure Of SMA Please Kindly Mail To My Account. "Service To Man Is Service To God"
A mySMAteam Member asked a question πŸ’­
β€’
View reactions
Do You Have A Technic To Feel Beter About The Look Of Your Body With All The Deformation Of Scoliosis?
A mySMAteam Member asked a question πŸ’­

This body shaming problem is for everyone i guess, not for people with sma only. But anyway I wanted to ask as a girl struggling with that feeling time to time

β€’
View reactions
A mySMAteam Member

Well Personally I don't much like wearing anything that Clings to My Body, because then My Crooked Body really shows. So I tend to buy what I like, but I may buy just a tad bit larger just so it's not… read more