improved sma screening and greater awareness in pediatricians key to early diagnosis and spinal muscular atrophy | mySMAteam
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Top 10 Search Results for "improved sma screening and greater awareness in pediatricians key to early diagnosis"

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SMA Diagnosis
A mySMAteam Member asked a question 💭

So after the neurologist gave me the SMA diagnosis in Jan, my mom remembered that we were sent to a genetic specialist when I was 4(1984); and SMA wasnt discussed at all.
Just curious if that is a common occurrence, or was SMA just not as well know in 1984?

A mySMAteam Member

Wow!

What Gene Causes SMA?
A mySMAteam Member asked a question 💭
Is Ridisplam Effective For SMA-LED1 Disease?
A mySMAteam Member asked a question 💭
What Is SMA-LED? Read Article...
Treatment Kab Aayega Sma Type 3 Ka
A mySMAteam Member asked a question 💭
Hi, I Have Sma Type 3, From Few Days I Have Some Involuntar Facial And Finger Twitching, It Is Normal ? I Was Kinda Stressed Too
A mySMAteam Member asked a question 💭
Sir If Any Updates Regarding The Complete Cure Of SMA Please Kindly Mail To My Account. "Service To Man Is Service To God"
A mySMAteam Member asked a question 💭
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Scoliosis
A mySMAteam Member asked a question 💭

Does scoliosis cause death

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A mySMAteam Member

So...I don't want to paint an overly rosy picture. The healing after my surgery took months. It wasn't a pleasant experience, the healing was very painful and I had complications that led to a… read more

Anyone With Type 1 Sma Child Who Got Zolgensma?
A mySMAteam Member asked a question 💭
A mySMAteam Member

Yes, at 8 months old. His legs started moving in 2 days. He can now swallow, stand independently, walk short distances, and started riding a bike with training wheels. My general answer is to reply… read more

Which Is Better For Treating Sma Disease, Is Evrysdi Or Spinraza?
A mySMAteam Member asked a question 💭

Which is better for treating sma disease, is Evrysdi or Spinraza?

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Medicare, Medicaid, Medicare Advantage,Medicare Special Needs Plans,glasses...???
A mySMAteam Member asked a question 💭

One day last week I asked my attendant as usual to clean my eye glasses before putting them on me. They were still really foggy...as an artist , I really rely on my vision, so he cleaned them again . Still foggy, tried glass cleaner, lens cleaner etc. After an argument in which I insisted that I was not in fact going blind, I went to the eye glass store and discovered that I need new glasses...the scratch guard wore off my glasses...now everything is foggy. I thought scratch guard was… read more

A mySMAteam Member

Thanks. I know there are Medicare Advantage plans that cover eye glasses...but apparently regular Medicare does not and it appears Medicaid only to age 21. The problem is I am not sure if my… read more