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Top 10 Search Results for "sma awareness month how to participate"

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What Gene Causes SMA?
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Is Ridisplam Effective For SMA-LED1 Disease?
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What Is SMA-LED? Read Article...
Treatment Kab Aayega Sma Type 3 Ka
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Sir If Any Updates Regarding The Complete Cure Of SMA Please Kindly Mail To My Account. "Service To Man Is Service To God"
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Are There Any Moms Who Had Been Diagnosed Before They Had Children?
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A mySMAteam Member

I have SMA3
I’m 36 and was diagnosed at age 5. I just had my first baby almost 5 months ago. It’s tough. So worth it but I’m struggling during the day with him due to lack of strength and covid… read more

Anyone With Type 1 Sma Child Who Got Zolgensma?
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A mySMAteam Member

Yes, at 8 months old. His legs started moving in 2 days. He can now swallow, stand independently, walk short distances, and started riding a bike with training wheels. My general answer is to reply… read more

Which Is Better For Treating Sma Disease, Is Evrysdi Or Spinraza?
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Which is better for treating sma disease, is Evrysdi or Spinraza?

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Scoliosis
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Does scoliosis cause death

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A mySMAteam Member

So...I don't want to paint an overly rosy picture. The healing after my surgery took months. It wasn't a pleasant experience, the healing was very painful and I had complications that led to a… read more

Can Aspiration Be Fatal
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How common or likely is it for people with SMA to die from aspirating?

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I think it's best to ask your neurologist.

SMA Diagnosis
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So after the neurologist gave me the SMA diagnosis in Jan, my mom remembered that we were sent to a genetic specialist when I was 4(1984); and SMA wasnt discussed at all.
Just curious if that is a common occurrence, or was SMA just not as well know in 1984?

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A mySMAteam Member

Wow!