sma and covid 19 are you at greater risk and spinal muscular atrophy | mySMAteam

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Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "sma and covid 19 are you at greater risk"

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Top 5 searches:
Are There Any Moms Who Had Been Diagnosed Before They Had Children?
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A mySMAteam Member

I have SMA3
I’m 36 and was diagnosed at age 5. I just had my first baby almost 5 months ago. It’s tough. So worth it but I’m struggling during the day with him due to lack of strength and covid… read more

What Gene Causes SMA?
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Is Ridisplam Effective For SMA-LED1 Disease?
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What Is SMA-LED? Read Article...
Treatment Kab Aayega Sma Type 3 Ka
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Anxiety Experiences With Sma Is Intrinsically Linked To The Condition Not As A Result Of, Is Comes With A Fatigue Totally Different
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Spinal Muscular Atrophy Pathophysiology Read Article...
SMA Diagnosis
A mySMAteam Member asked a question 💭

So after the neurologist gave me the SMA diagnosis in Jan, my mom remembered that we were sent to a genetic specialist when I was 4(1984); and SMA wasnt discussed at all.
Just curious if that is a common occurrence, or was SMA just not as well know in 1984?

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A mySMAteam Member

Wow!

Sir If Any Updates Regarding The Complete Cure Of SMA Please Kindly Mail To My Account. "Service To Man Is Service To God"
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Anyone With Type 1 Sma Child Who Got Zolgensma?
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Yes, at 8 months old. His legs started moving in 2 days. He can now swallow, stand independently, walk short distances, and started riding a bike with training wheels. My general answer is to reply… read more

Which Is Better For Treating Sma Disease, Is Evrysdi Or Spinraza?
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Which is better for treating sma disease, is Evrysdi or Spinraza?

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SMA Adults, What Have Your Been Your Greatest Accomplishments And Some Struggles You Have Had.
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Growing up, at what age did you understand or had been told you have not something wrong with you but that you have special muscles unlike the other kids? (Thats what we call connors condition, to help his older 8 yr old brother understand) connor is type 1 and is currently 7 months old. Recvd zolgemsa on halloween. Didnt finish our last loading dose of spinraza. If you currently do maintaince dosing of spinraza has it been successful for you? Pro? Cons? Effectiveness still? At what age did you… read more

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A mySMAteam Member

Thank you so much for shared your story! I’m confused as to what I’m hearing about the Spinraza treatment...Isn’t that treatment extremely hard to get because of price? I don’t mean to pry but how did… read more