... What’s your ideal date? A Disney movie day or game night! My Perspective articles discuss SMA from a specific point of view. We understand that everyone with SMA or caring for someone with the condition has a different experience. We aim to share as many of those viewpoints as we can. We’d love to hear from you. ...
My Perspective: Dating With SMA
... What’s your ideal date? A Disney movie day or game night! My Perspective articles discuss SMA from a specific point of view. We understand that everyone with SMA or caring for someone with the condition has a different experience. We aim to share as many of those viewpoints as we can. We’d love to hear from you. ...
... The qualities of a great doctor are a bit more specific if you’re living with SMA, but it’s definitely possible to find a specialist who has everything needed to make them the ideal partner in keeping you healthy.Following are some of the key qualities I look for in a doctor. ...
Posted 01/13/2022
What Makes a Good Doctor for People With SMA?
... The qualities of a great doctor are a bit more specific if you’re living with SMA, but it’s definitely possible to find a specialist who has everything needed to make them the ideal partner in keeping you healthy.Following are some of the key qualities I look for in a doctor. ...
Posted 01/13/2022
... For someone with SMA, being truly alone is not quite an ideal situation. I needed space in any way reasonably possible. My parents were usually great about it, but when they didn’t leave me ways to get solitude or time on my own with friends, it was hard on me. I did not have the ability to just leave to find space to get my thoughts together. ...
Posted 12/01/2021
Tips for Parenting Teenagers With SMA
... For someone with SMA, being truly alone is not quite an ideal situation. I needed space in any way reasonably possible. My parents were usually great about it, but when they didn’t leave me ways to get solitude or time on my own with friends, it was hard on me. I did not have the ability to just leave to find space to get my thoughts together. ...
Posted 12/01/2021
... Though screening rates have increased over the years, the tests aren’t always conducted as early as would be ideal. “Although early diagnosis and treatment is vital to allow for effective interventions before severe permanent neuron damage occurs, significant diagnostic delay for SMA patients persists,” according to the study. ...
Posted 10/28/2021
Improved SMA Screening and Greater Awareness in Pediatricians Key to Early Diagnosis
... Though screening rates have increased over the years, the tests aren’t always conducted as early as would be ideal. “Although early diagnosis and treatment is vital to allow for effective interventions before severe permanent neuron damage occurs, significant diagnostic delay for SMA patients persists,” according to the study. ...
Posted 10/28/2021
... In other words, they are ideal when the biology of a disease unfolds over time as a part of an organism’s development. Zebra fish embryos grow in transparent eggs, which lets researchers easily watch as the embryo develops. Zebra fish also mature quickly, which shortens experiment time frames and speeds scientific conclusions. ...
Why the Zebra Fish? Understanding the SMA Study Model
... In other words, they are ideal when the biology of a disease unfolds over time as a part of an organism’s development. Zebra fish embryos grow in transparent eggs, which lets researchers easily watch as the embryo develops. Zebra fish also mature quickly, which shortens experiment time frames and speeds scientific conclusions. ...
... My parents, after years of carrying my sister and me up and down stairs, decided a one-story house was ideal. ...
... Focusing on Your DietThere’s no ideal diet for SMA, but good nutrition is essential for keeping your energy levels up and promoting regular bowel movements. If you have difficulty eating, you may need to include more pureed or liquid foods in your diet. ...
Living With SMA: Your Guide
... Focusing on Your DietThere’s no ideal diet for SMA, but good nutrition is essential for keeping your energy levels up and promoting regular bowel movements. If you have difficulty eating, you may need to include more pureed or liquid foods in your diet. ...
Join
