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Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "how to live independently and thrive with sma"

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Top 5 searches:
What Gene Causes SMA?
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Is Ridisplam Effective For SMA-LED1 Disease?
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What Is SMA-LED? Read Article...
Treatment Kab Aayega Sma Type 3 Ka
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Hi, I Have Sma Type 3, From Few Days I Have Some Involuntar Facial And Finger Twitching, It Is Normal ? I Was Kinda Stressed Too
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Sir If Any Updates Regarding The Complete Cure Of SMA Please Kindly Mail To My Account. "Service To Man Is Service To God"
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Anyone With Type 1 Sma Child Who Got Zolgensma?
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Yes, at 8 months old. His legs started moving in 2 days. He can now swallow, stand independently, walk short distances, and started riding a bike with training wheels. My general answer is to reply… read more

How To Spend A Day？
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Hi guys , I am 22 years old.I live in the countryside of Malaysia.I'm here today to ask a small question. but my english level quite bad, hope you all who read this post can take some patient to understand my voice.

Since I didn't have a university, I only finished my second year of high school.I have graduated for almost four years，but I never know how my future will happen .To be honest, I always thought I was an ordinary person, because I went to an ordinary high school, and I only realized… read more

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A mySMAteam Member

My heart goes out to you. I find it hard to imagine being in your situation. Are there care facilities available for you?

Can Aspiration Be Fatal
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How common or likely is it for people with SMA to die from aspirating?

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A mySMAteam Member

I think it's best to ask your neurologist.

Are There Any Moms Who Had Been Diagnosed Before They Had Children?
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I have SMA3
I’m 36 and was diagnosed at age 5. I just had my first baby almost 5 months ago. It’s tough. So worth it but I’m struggling during the day with him due to lack of strength and covid… read more

I Have SMA Type 3 And Have A Torn Rotator Cuff. I Am Wondering If Anyone Has Dealt With This Specific Injury While Also Having SMA?
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A mySMAteam Member

Working at it in PT now. Getting some relief 🙌🏻. I was just curious if anyone had some quick fixes 🤣. Unfortunately I think this will just be a long term thing I’m dealing with.