... References Best Practices for Physical Therapists & Clinical Evaluators in Spinal Muscular Atrophy (SMA) — Cure SMA Spinal Muscular Atrophy: The Use of Functional Motor Scales in the Era of Disease-Modifying Treatment — Child Neurology Open Describing SMA — Cure SMA Children’s Hospital of Philadelphia Infant Test of Neuromuscular Disorders (CHOP INTEND ...
... References Best Practices for Physical Therapists & Clinical Evaluators in Spinal Muscular Atrophy (SMA) — Cure SMA Spinal Muscular Atrophy: The Use of Functional Motor Scales in the Era of Disease-Modifying Treatment — Child Neurology Open Describing SMA — Cure SMA Children’s Hospital of Philadelphia Infant Test of Neuromuscular Disorders (CHOP INTEND ...
... INTEND, HMFSE) for People With SMA and How They Are Used To Monitor Treatment Outcomes — Spinal Muscular Atrophy UK Nusinersen Versus Sham Control in Infantile-Onset Spinal Muscular Atrophy — The New England Journal of Medicine ...
... INTEND, HMFSE) for People With SMA and How They Are Used To Monitor Treatment Outcomes — Spinal Muscular Atrophy UK Nusinersen Versus Sham Control in Infantile-Onset Spinal Muscular Atrophy — The New England Journal of Medicine ...
... Most types of SMA affect infants and young children, but a few affect older children (SMA3) and adults (SMA4 and some cases of SMA-LED). Symptoms typically begin after 30 years of age and may not appear until much later in life. ...
... Most types of SMA affect infants and young children, but a few affect older children (SMA3) and adults (SMA4 and some cases of SMA-LED). Symptoms typically begin after 30 years of age and may not appear until much later in life. ...
... These children, who all had SMA type 1, also experienced better motor function as the biomarker levels dropped. However, among older children with multiple SMN2 copies and SMA types 2 or 3, sNfL levels stayed stable. Overall, the researchers found that sNfL could be used as a biomarker that signals the severity of a person’s SMA. ...
... These children, who all had SMA type 1, also experienced better motor function as the biomarker levels dropped. However, among older children with multiple SMN2 copies and SMA types 2 or 3, sNfL levels stayed stable. Overall, the researchers found that sNfL could be used as a biomarker that signals the severity of a person’s SMA. ...
... References Breathing Basics: Respiratory Care for Children with Spinal Muscular Atrophy — CureSMA Spinal Muscular Atrophy (SMA): Signs and Symptoms — Muscular Dystrophy Association Breathing Risks and Care — CureSMA Spinal Muscular Atrophy (SMA): Medical Management — Muscular Dystrophy Association What is BiPAP? ...
... References Breathing Basics: Respiratory Care for Children with Spinal Muscular Atrophy — CureSMA Spinal Muscular Atrophy (SMA): Signs and Symptoms — Muscular Dystrophy Association Breathing Risks and Care — CureSMA Spinal Muscular Atrophy (SMA): Medical Management — Muscular Dystrophy Association What is BiPAP? ...
... One study of 20 infants with SMA has measured the effects of nusinersen treatment over three years. Researchers found that nusinersen improved survival and helped the infants reach developmental milestones over the duration of the study. ...
... One study of 20 infants with SMA has measured the effects of nusinersen treatment over three years. Researchers found that nusinersen improved survival and helped the infants reach developmental milestones over the duration of the study. ...
... Because SMA is a rare disease, there’s a good chance you may not already know people who can relate to what you and your family are going through. Meeting others who are also dealing with this condition can provide insight and inspiration for living with SMA. ...
... Because SMA is a rare disease, there’s a good chance you may not already know people who can relate to what you and your family are going through. Meeting others who are also dealing with this condition can provide insight and inspiration for living with SMA. ...
... These events were designed to raise the collective voice of people with SMA, share their experiences, and showcase the important work happening within the SMA community.#SMASpotlight On 3 Patient Advocates ...
... These events were designed to raise the collective voice of people with SMA, share their experiences, and showcase the important work happening within the SMA community.#SMASpotlight On 3 Patient Advocates ...
... What qualities do you look for in a doctor? Take the poll and share your thoughts below in the comments section. Columnists on mySMAteam discuss SMA from a specific point of view. Columnists’ articles don’t reflect the opinions of mySMAteam staff, medical experts, partners, advertisers, or sponsors. ...
... What qualities do you look for in a doctor? Take the poll and share your thoughts below in the comments section. Columnists on mySMAteam discuss SMA from a specific point of view. Columnists’ articles don’t reflect the opinions of mySMAteam staff, medical experts, partners, advertisers, or sponsors. ...
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