... Columnists on mySMAteam discuss SMA from a specific point of view. Columnists' articles don’t reflect the opinions of mySMAteam staff, medical experts, partners, advertisers, or sponsors. Content on mySMAteam isn't intended as a substitute for professional medical advice, diagnosis, or treatment. ...
... Columnists on mySMAteam discuss SMA from a specific point of view. Columnists' articles don’t reflect the opinions of mySMAteam staff, medical experts, partners, advertisers, or sponsors. Content on mySMAteam isn't intended as a substitute for professional medical advice, diagnosis, or treatment. ...
... Being able to discuss two or three different medications and which one you want to go on is a much better experience.You have to go with what you feel is right, and if the kids aren’t doing well, you can consider switching courses. That’s why it’s so important to follow up with your neurologist. ...
... Being able to discuss two or three different medications and which one you want to go on is a much better experience.You have to go with what you feel is right, and if the kids aren’t doing well, you can consider switching courses. That’s why it’s so important to follow up with your neurologist. ...
... As funny as it may sound, the sooner one can accept that people are naturally going to joke or comment about disabilities, the easier it will be. As I see it, at the end of the day, you shouldn’t worry too much about the specific terms people use. ...
... As funny as it may sound, the sooner one can accept that people are naturally going to joke or comment about disabilities, the easier it will be. As I see it, at the end of the day, you shouldn’t worry too much about the specific terms people use. ...
... To qualify for the trial, potential participants: Must be between the ages of 4 and 21 Must be currently taking a disease-modifying therapy (DMT), such as nusinersen (Spinraza) or risdiplam (Evrysdi), and/or have previously taken onasemnogene abeparvovec-xioi (Zolgensma) Can have any type of SMACan have any level of mobility Can’t have previously used ...
... To qualify for the trial, potential participants: Must be between the ages of 4 and 21 Must be currently taking a disease-modifying therapy (DMT), such as nusinersen (Spinraza) or risdiplam (Evrysdi), and/or have previously taken onasemnogene abeparvovec-xioi (Zolgensma) Can have any type of SMACan have any level of mobility Can’t have previously used ...
... Your SMA Treatment May Change During Your PregnancyThere isn’t a lot of information about how SMA treatments can affect you or your baby during pregnancy. Talk to your SMA specialist and your obstetrician about the best treatment option for you before, during, and after your pregnancy.There are two medications approved by the U.S. ...
... Your SMA Treatment May Change During Your PregnancyThere isn’t a lot of information about how SMA treatments can affect you or your baby during pregnancy. Talk to your SMA specialist and your obstetrician about the best treatment option for you before, during, and after your pregnancy.There are two medications approved by the U.S. ...
... This flyer shows how physical therapy can be incorporated into the school day and discusses modifying the goals of physical education classes for students with SMA. You can also talk to your child’s teacher about setting up a presentation for your child’s classmates on SMA, which may reduce bullying and increase acceptance. ...
... This flyer shows how physical therapy can be incorporated into the school day and discusses modifying the goals of physical education classes for students with SMA. You can also talk to your child’s teacher about setting up a presentation for your child’s classmates on SMA, which may reduce bullying and increase acceptance. ...
... Even though Ican walk, walking on sand is a major undertaking, so I am thinking about renting an electric beach wheelchair so that Ican ‘walk’ the beach.”Finding a CommunityOn mySMAteam, the social network for people with SMA and their loved ones, more than 1,100 members come together to ask questions, give advice, and share their stories with others ...
... Even though Ican walk, walking on sand is a major undertaking, so I am thinking about renting an electric beach wheelchair so that Ican ‘walk’ the beach.”Finding a CommunityOn mySMAteam, the social network for people with SMA and their loved ones, more than 1,100 members come together to ask questions, give advice, and share their stories with others ...
... I would trust my mom or my two best girlfriends, Ashley and Skylar. What’s your ideal date? A Disney movie day or game night! My Perspective articles discuss SMA from a specific point of view. We understand that everyone with SMA or caring for someone with the condition has a different experience. ...
... I would trust my mom or my two best girlfriends, Ashley and Skylar. What’s your ideal date? A Disney movie day or game night! My Perspective articles discuss SMA from a specific point of view. We understand that everyone with SMA or caring for someone with the condition has a different experience. ...
... I use a GoGo scooter, which breaks down easily. It's definitely an adjustment, but I don’t want to give up on seeing different places and meeting new people.”Advocacy organizations can provide valuable support and resources. ...
... I use a GoGo scooter, which breaks down easily. It's definitely an adjustment, but I don’t want to give up on seeing different places and meeting new people.”Advocacy organizations can provide valuable support and resources. ...
Join