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Top 10 Search Results for "finding my voice for self advocacy"

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Earning Money While On Disability
A mySMAteam Member asked a question 💭

How do you earn money without loosing critical disability benefits and Medicare ? So, in many ways, I am very lucky. When I started needing attendant care, I did the math and there was no way I could earn enough money, keep working, and pay for attendant care. The programs in my state that cover attendant care very strictly require an individual have less than $2,000 in assets total (including such things as gold teeth, burial plots, etc) and not be employed. If not for my father's support… read more

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How To Spend A Day?
A mySMAteam Member asked a question 💭

Hi guys , I am 22 years old.I live in the countryside of Malaysia.I'm here today to ask a small question. but my english level quite bad, hope you all who read this post can take some patient to understand my voice.

Since I didn't have a university, I only finished my second year of high school.I have graduated for almost four years,but I never know how my future will happen .To be honest, I always thought I was an ordinary person, because I went to an ordinary high school, and I only realized… read more

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A mySMAteam Member

My heart goes out to you. I find it hard to imagine being in your situation. Are there care facilities available for you?

As Am Adult With SMA, How Does One Deal With A Caregiver Who Treats You Like A Child Especially When Rely On Them For Basic Needs?
A mySMAteam Member asked a question 💭

I am 40+ years old, have held jobs, am reasonably intelligent, but I still look like a teenager aside from a few grey hairs. My dad is 83, a little hard of hearing. My attendant, the only reliable attendant I can find in the entire state, is nearly the same age, is physically in much better shape, but is even harder of hearing. So I was dealing with my father who gets very grouchie when he hasnt eaten trying to help him with cooking which he doesnt know how to do and caregiver of course walks… read more

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A mySMAteam Member

Totally understand how that goes with unreliable care attendants, one's that you really don't want to be alone with or need to be either, or one's that actually really show up early or on time every… read more

Mac Users - What Assistive Technology Do You Use To Control Your Desktop?
A mySMAteam Member asked a question 💭

I recently bought my first desktop computer and I am so excited! I am currently using the magic trackpad, the built-in on screen keyboard, and voice control. Is there anything else I could be using to make things more efficient? I am on my computer pretty much all day, and I'm always looking for ways to be more productive while simultaneously reducing my fatigue.

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A mySMAteam Member

I have been using Dragon Naturally Speaking for years, and the newest version is much better. I also could not recommend Hot Virtual Keyboard enough. This is an amazing app that lets you customize… read more

Does Anyone Know Where I Could Sell Our Used Ki Mobility Wheelchair In Texas?
A mySMAteam Member asked a question 💭
I'm A Life Partner Caregiver Team Member. Trying To Get An Intermittent LOA. Doctor For Tammy Refused To Sign Unless She Fired Her PCA. ??
A mySMAteam Member asked a question 💭
Lack Of Oxygen In The Blood
A mySMAteam Member asked a question 💭

I have been suffering from a lack of oxygen in the blood for two months, and I started using supplementary oxygen and I did not feel better. For those who went through this experience, what did you do during the lack of oxygen?

Is Ridisplam Effective For SMA-LED1 Disease?
A mySMAteam Member asked a question 💭
What Is SMA-LED? Read Article...
Sir If Any Updates Regarding The Complete Cure Of SMA Please Kindly Mail To My Account. "Service To Man Is Service To God"
A mySMAteam Member asked a question 💭
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Do You Have A Technic To Feel Beter About The Look Of Your Body With All The Deformation Of Scoliosis?
A mySMAteam Member asked a question 💭

This body shaming problem is for everyone i guess, not for people with sma only. But anyway I wanted to ask as a girl struggling with that feeling time to time

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A mySMAteam Member

Well Personally I don't much like wearing anything that Clings to My Body, because then My Crooked Body really shows. So I tend to buy what I like, but I may buy just a tad bit larger just so it's not… read more