dr strober offers tips for transitioning to adult care for sma and spinal muscular atrophy | mySMAteam

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Top 10 Search Results for "dr strober offers tips for transitioning to adult care for sma"

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Is Ridisplam Effective For SMA-LED1 Disease?
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What Is SMA-LED? Read Article...
What Gene Causes SMA?
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Sir If Any Updates Regarding The Complete Cure Of SMA Please Kindly Mail To My Account. "Service To Man Is Service To God"
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Which Is Better For Treating Sma Disease, Is Evrysdi Or Spinraza?
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Which is better for treating sma disease, is Evrysdi or Spinraza?

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Treatment Kab Aayega Sma Type 3 Ka
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Medicare, Medicaid, Medicare Advantage,Medicare Special Needs Plans,glasses...???
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One day last week I asked my attendant as usual to clean my eye glasses before putting them on me. They were still really foggy...as an artist , I really rely on my vision, so he cleaned them again . Still foggy, tried glass cleaner, lens cleaner etc. After an argument in which I insisted that I was not in fact going blind, I went to the eye glass store and discovered that I need new glasses...the scratch guard wore off my glasses...now everything is foggy. I thought scratch guard was… read more

A mySMAteam Member

Thanks. I know there are Medicare Advantage plans that cover eye glasses...but apparently regular Medicare does not and it appears Medicaid only to age 21. The problem is I am not sure if my… read more

As Am Adult With SMA, How Does One Deal With A Caregiver Who Treats You Like A Child Especially When Rely On Them For Basic Needs?
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I am 40+ years old, have held jobs, am reasonably intelligent, but I still look like a teenager aside from a few grey hairs. My dad is 83, a little hard of hearing. My attendant, the only reliable attendant I can find in the entire state, is nearly the same age, is physically in much better shape, but is even harder of hearing. So I was dealing with my father who gets very grouchie when he hasnt eaten trying to help him with cooking which he doesnt know how to do and caregiver of course walks… read more

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A mySMAteam Member

Totally understand how that goes with unreliable care attendants, one's that you really don't want to be alone with or need to be either, or one's that actually really show up early or on time every… read more

Anyone With Type 1 Sma Child Who Got Zolgensma?
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A mySMAteam Member

Yes, at 8 months old. His legs started moving in 2 days. He can now swallow, stand independently, walk short distances, and started riding a bike with training wheels. My general answer is to reply… read more

Can Aspiration Be Fatal
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How common or likely is it for people with SMA to die from aspirating?

A mySMAteam Member

I think it's best to ask your neurologist.

Can Adult Be Treated With Zolgensma?
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