how to appeal an insurance company denial for sma and spinal muscular atrophy | mySMAteam
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Is Ridisplam Effective For SMA-LED1 Disease?
A mySMAteam Member asked a question 💭
What Is SMA-LED? Read Article...
Medicare, Medicaid, Medicare Advantage,Medicare Special Needs Plans,glasses...???
A mySMAteam Member asked a question 💭

One day last week I asked my attendant as usual to clean my eye glasses before putting them on me. They were still really foggy...as an artist , I really rely on my vision, so he cleaned them again . Still foggy, tried glass cleaner, lens cleaner etc. After an argument in which I insisted that I was not in fact going blind, I went to the eye glass store and discovered that I need new glasses...the scratch guard wore off my glasses...now everything is foggy. I thought scratch guard was… read more

A mySMAteam Member

Thanks. I know there are Medicare Advantage plans that cover eye glasses...but apparently regular Medicare does not and it appears Medicaid only to age 21. The problem is I am not sure if my… read more

What Gene Causes SMA?
A mySMAteam Member asked a question 💭
Treatment Kab Aayega Sma Type 3 Ka
A mySMAteam Member asked a question 💭
Sir If Any Updates Regarding The Complete Cure Of SMA Please Kindly Mail To My Account. "Service To Man Is Service To God"
A mySMAteam Member asked a question 💭
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Which Is Better For Treating Sma Disease, Is Evrysdi Or Spinraza?
A mySMAteam Member asked a question 💭

Which is better for treating sma disease, is Evrysdi or Spinraza?

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Are There Any Moms Who Had Been Diagnosed Before They Had Children?
A mySMAteam Member asked a question 💭
A mySMAteam Member

I have SMA3
I’m 36 and was diagnosed at age 5. I just had my first baby almost 5 months ago. It’s tough. So worth it but I’m struggling during the day with him due to lack of strength and covid… read more

Can Aspiration Be Fatal
A mySMAteam Member asked a question 💭

How common or likely is it for people with SMA to die from aspirating?

A mySMAteam Member

I think it's best to ask your neurologist.

What Exactly Is SMA? I Am 61. HAD AN L-5/S-1 Fusion When I Was 43..Right Now AmI Might Need To Get The Rest Of My Lubar Spine Fused.
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Anyone With Type 1 Sma Child Who Got Zolgensma?
A mySMAteam Member asked a question 💭
A mySMAteam Member

Yes, at 8 months old. His legs started moving in 2 days. He can now swallow, stand independently, walk short distances, and started riding a bike with training wheels. My general answer is to reply… read more