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Top 10 Search Results for "caregivers sought for sma outcome tool validation study"

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As Am Adult With SMA, How Does One Deal With A Caregiver Who Treats You Like A Child Especially When Rely On Them For Basic Needs?
A mySMAteam Member asked a question 💭

I am 40+ years old, have held jobs, am reasonably intelligent, but I still look like a teenager aside from a few grey hairs. My dad is 83, a little hard of hearing. My attendant, the only reliable attendant I can find in the entire state, is nearly the same age, is physically in much better shape, but is even harder of hearing. So I was dealing with my father who gets very grouchie when he hasnt eaten trying to help him with cooking which he doesnt know how to do and caregiver of course walks… read more

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A mySMAteam Member

Totally understand how that goes with unreliable care attendants, one's that you really don't want to be alone with or need to be either, or one's that actually really show up early or on time every… read more

Is Ridisplam Effective For SMA-LED1 Disease?
A mySMAteam Member asked a question 💭
What Is SMA-LED? Read Article...
What Gene Causes SMA?
A mySMAteam Member asked a question 💭
Treatment Kab Aayega Sma Type 3 Ka
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Anxiety Experiences With Sma Is Intrinsically Linked To The Condition Not As A Result Of, Is Comes With A Fatigue Totally Different
A mySMAteam Member asked a question 💭
Spinal Muscular Atrophy Pathophysiology Read Article...
Which Is Better For Treating Sma Disease, Is Evrysdi Or Spinraza?
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Which is better for treating sma disease, is Evrysdi or Spinraza?

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Scoliosis
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Does scoliosis cause death

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A mySMAteam Member

So...I don't want to paint an overly rosy picture. The healing after my surgery took months. It wasn't a pleasant experience, the healing was very painful and I had complications that led to a… read more

Sir If Any Updates Regarding The Complete Cure Of SMA Please Kindly Mail To My Account. "Service To Man Is Service To God"
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I'm A Life Partner Caregiver Team Member. Trying To Get An Intermittent LOA. Doctor For Tammy Refused To Sign Unless She Fired Her PCA. ??
A mySMAteam Member asked a question 💭
Anyone With Type 1 Sma Child Who Got Zolgensma?
A mySMAteam Member asked a question 💭
A mySMAteam Member

Yes, at 8 months old. His legs started moving in 2 days. He can now swallow, stand independently, walk short distances, and started riding a bike with training wheels. My general answer is to reply… read more