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Top 10 Search Results for "what is kugelberg welander disease"

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Is Ridisplam Effective For SMA-LED1 Disease?
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What Is SMA-LED? Read Article...
Which Is Better For Treating Sma Disease, Is Evrysdi Or Spinraza?
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Which is better for treating sma disease, is Evrysdi or Spinraza?

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What Gene Causes SMA?
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Anxiety Experiences With Sma Is Intrinsically Linked To The Condition Not As A Result Of, Is Comes With A Fatigue Totally Different
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Spinal Muscular Atrophy Pathophysiology Read Article...
Lack Of Oxygen In The Blood
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I have been suffering from a lack of oxygen in the blood for two months, and I started using supplementary oxygen and I did not feel better. For those who went through this experience, what did you do during the lack of oxygen?

Earning Money While On Disability
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How do you earn money without loosing critical disability benefits and Medicare ? So, in many ways, I am very lucky. When I started needing attendant care, I did the math and there was no way I could earn enough money, keep working, and pay for attendant care. The programs in my state that cover attendant care very strictly require an individual have less than $2,000 in assets total (including such things as gold teeth, burial plots, etc) and not be employed. If not for my father's support… read more

Sir If Any Updates Regarding The Complete Cure Of SMA Please Kindly Mail To My Account. "Service To Man Is Service To God"
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How To Spend A Day?
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Hi guys , I am 22 years old.I live in the countryside of Malaysia.I'm here today to ask a small question. but my english level quite bad, hope you all who read this post can take some patient to understand my voice.

Since I didn't have a university, I only finished my second year of high school.I have graduated for almost four years,but I never know how my future will happen .To be honest, I always thought I was an ordinary person, because I went to an ordinary high school, and I only realized… read more

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A mySMAteam Member

My heart goes out to you. I find it hard to imagine being in your situation. Are there care facilities available for you?

Bipap
A mySMAteam Member asked a question 💭

Please answer, I only use the bipap device when sleeping. Is it possible that I do not use gaseous breathing in the future?

A mySMAteam Member

I would ask your doctor that question. I wish you the best!!

Zolgensma For Adults
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There was an article last November saying Zolgensma could be helpful for adults. Will they be doing a clinical trial on that soon? I have not seen anything further on it.

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A mySMAteam Member

Wow, this is the first I've read of this. Can anybody confirm?