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A mySMAteam Member asked a question 💭
Hastings, MN
March 23, 2020
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Answer Summary

Members across a wide age range, from their twenties to seventies, shared which type of SMA they have, revealing the diversity within the... Read more

Members across a wide age range, from their twenties to seventies, shared which type of SMA they have, revealing the diversity within the adult SMA community and showing that people with all types, including Type 1, Type 2, Type 3, and Type 4, are living full lives. Several members highlighted meaningful life milestones, including marriage, raising children, becoming grandparents, and celebrating decades of life with SMA, often defying early expectations. A recurring theme was the sense of connection and visibility that comes from seeing others living with the same condition at different stages of life.

A mySMAteam Member

I'm 41 and have type 3

June 12, 2023
A mySMAteam Member

Barbara Cabe SMA-LED2 73yrs old

July 3, 2025
A mySMAteam Member

Distal Type 4. Male 75 y/o. Diagnosed 13 years ago. My scooter is my life line. My wife is my life. Our doggie comes in a close second.

January 11, 2023
A mySMAteam Member

I has my poliovirus come back. I was also Army lost my memory. Now I am in a wheelchair. Type 5

April 25, 2023
A mySMAteam Member

Am old enough that I an not going to say my age, but am older than I look. People often guess my age as being ten and twenty years younger then I actually am which I am good with although it use to be irritating when I was the age they think I am now. I have SMA type 2

August 16, 2022 (edited)

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