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Your Child Is Newly Diagnosed With SMA. Now What?
Children can be diagnosed with spinal muscular atrophy (SMA) during infancy, childhood, or adoles...
Your Child Is Newly Diagnosed With SMA. Now What?
Children can be diagnosed with spinal muscular atrophy (SMA) during infancy, childhood, or adoles...
Ways To Make Your Home More SMA-Friendly
Our first home was a four-bedroom, Cape Cod-style house in a neighborhood of cookie-cutter homes ...
Ways To Make Your Home More SMA-Friendly
Our first home was a four-bedroom, Cape Cod-style house in a neighborhood of cookie-cutter homes ...
6 Tips for Easier Traveling With SMA
For people with spinal muscular atrophy (SMA), long trips away from home can seem like an enormou...
6 Tips for Easier Traveling With SMA
For people with spinal muscular atrophy (SMA), long trips away from home can seem like an enormou...
Learning Self-Advocacy at a Young Age: My Experiences
Historically, spinal muscular atrophy (SMA) has been difficult to diagnose. The doctors I saw as ...
Learning Self-Advocacy at a Young Age: My Experiences
Historically, spinal muscular atrophy (SMA) has been difficult to diagnose. The doctors I saw as ...
My Perspective: A Letter to a Thief
You were always there, hiding in the shadows like a criminal. For a long time, you were undetecte...
My Perspective: A Letter to a Thief
You were always there, hiding in the shadows like a criminal. For a long time, you were undetecte...
How To Reduce Medical Bills: Top Financial Expert Shares 10 Tips
To determine how you can reduce your medical expenses, mySMAteam sat down with Susan Null of Sys...
How To Reduce Medical Bills: Top Financial Expert Shares 10 Tips
To determine how you can reduce your medical expenses, mySMAteam sat down with Susan Null of Sys...
Winter Safety Tips for People With SMA
Over the years I have pieced together a few strategies for dealing with the cold season when livi...
Posted 12/28/2021
Winter Safety Tips for People With SMA
Over the years I have pieced together a few strategies for dealing with the cold season when livi...
Posted 12/28/2021
Independence Starts With Desire
One of the biggest challenges of living with spinal muscular atrophy (SMA) is the difficulty of b...
Posted 10/07/2021
Independence Starts With Desire
One of the biggest challenges of living with spinal muscular atrophy (SMA) is the difficulty of b...
Posted 10/07/2021
How To Use a Feeding Tube at Home: 12 Tips for Caregivers
Weakness in the throat or mouth can make swallowing without choking difficult or impossible for p...
How To Use a Feeding Tube at Home: 12 Tips for Caregivers
Weakness in the throat or mouth can make swallowing without choking difficult or impossible for p...
Tips for Parenting Teenagers With SMA
My parents were always pretty supportive throughout high school and college. Still, adolescence i...
Posted 12/01/2021
Tips for Parenting Teenagers With SMA
My parents were always pretty supportive throughout high school and college. Still, adolescence i...
Posted 12/01/2021