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I Have Had 3 Falls In 5 Days. My Legs Collapse Without Warning And I Crash To The Ground. I Am Frightened. I Don’t Know What To Do.
The doctor said to do balance and strength exercises but that wont help with atrophy. Do I visit a neurologist for advice or give up doing things in the house like preparing meals and washing up.
How Can A Person Living With SMA Reduce The Recurrence Of Bronchial Infections E.g. Bronchitis, Pneumonia?
I have SMA and constantly suffer from bronchial infections due to post nasal drip and would really like to be able to manage it .
Bipap at night with settings you can handle and that will help you sleep through the night. Good suction, coughalator and vest treatments morning and night(this is all what we do for my son) and I… read more
Is SMA The Cause Of My Tiredness? It Is Hard Work Doing Anything And Walking. It Would Make Sense That That Is The Reason For My Tiredness.
Ok Fred I will make more effort thanks
Lifting Weights - Causing Or Limiting Atrophy?
Hi all. The advice is so conflicting on the topic of lifting weights. I'm a strong type 3. I can still feel good muscle in my arms and it exists (albeit not great) in my legs. Is lifting weights ok or are we to limit our exercise to lifting our own body weight only? I am on Evrysdi.
EricOvelgone, I feel the best for everyone is to ask their doctor who is treating their SMA about working out. This way you and others have no confusion. Just my opinion...
I Am 68 And Have Spinal Muscular Atrophy. How Do You Live After You Lose Your Independence?
Your independence is up to YOU! I'm 65 and I'm always going out. Such as concerts, sporting events, and dinners with family and friends. We all have choices. You're letting SMA define you. People with… read more
How Can I Loose Weight?
I have SMA type 3 and I feel like i’ve gain some weight and don’t know how to loose it. I heard Fasting can just make things worse.
Limit your portions. No one should eat until their stuff. And do lite exercises.
Shortness Of Breath At Times
I have scoliosis, but I haven't had any breathing problems. I had hip surgery in 2020 and since that day I can't sit much because of the pain. This year I started to feel short of breath when sitting and lying on my right side only, sometimes sitting or lying in the same position I used to feel short of breath. I don't feel short of breath at all. What could be the cause of my shortness of breath? Do any of you have this experience? Most of my time I lie down because I can't sit up much… read more
It scares me that I did not feel shortness of breath before the surgery. Why did shortness of breath appear until after the surgery?
