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Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Which SMA Symptom Surprised You The Most?

A mySMAteam Member asked a question 💭
San Francisco, CA
August 19
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A mySMAteam Member

Gastro intestinal issues. For nearly my entire life, I would get terrible stomach aches. I eat like a bird, so it wasn't from over indulging. I went to so many specialist, was told repeatedly it was 'all in my head', took supplements, probiotics, changed diet numerous times...spend forever in the bathroom. It was only after coming across a tiny article ...probably on here...that I ever saw any mention of it being an effect of SMA. Not a single doctor of the myriad of doctors ever mentioned this as a possibility and it is something family members don't understand as it doesn't seem directly related to muscle weakness. Is impossible to explain to people too.

August 20
A mySMAteam Member

Walking, or being able to walk without support

August 19
A mySMAteam Member

Climbing stairs, not being able to stand up from a chair or the toilet and the horrible leg cramps!

August 19
A mySMAteam Member

In one day, I couldn't standup no more the next day from the toilet. I have tried several times during the day, but with no luck, unfortunately I had to learn and except for what it was...

August 19
A mySMAteam Member

That it increased my sex drive.

August 25

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