Are You Frustrated With Finding Effective Treatments For SMA?
We do not have health care. We have only the medical mafia
Genetech can help you with everysdi/risdiplam. All 3 mfrs have abundant resources and are eager to help you
Yes I am spinarza liquid I really canβt tell the difference I been on it 2 yrs now
Yep. Because despite promises made, contacting MPs, Health Ministers, advocating with CURE SMA Canada etc, I continue to be declined to receive any treatment as a 38 year old female living in Alberta with Type 3 SMA.
Declined 9 times over the past 3 years and getting quite close to being non-ambulatory.
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