We do not have health care. We have only the medical mafia

Genetech can help you with everysdi/risdiplam. All 3 mfrs have abundant resources and are eager to help you

Yes I am spinarza liquid I really can’t tell the difference I been on it 2 yrs now

Have you contacted your Biogen (for spinraza) family representative? I recommend working with the company who has the medicine you desire, they can help find solution. 66 year old male, sma3, spinraza for several years.

Yep. Because despite promises made, contacting MPs, Health Ministers, advocating with CURE SMA Canada etc, I continue to be declined to receive any treatment as a 38 year old female living in Alberta with Type 3 SMA.
Declined 9 times over the past 3 years and getting quite close to being non-ambulatory.