Are You Frustrated With Finding Effective Treatments For SMA? | mySMAteam

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Are You Frustrated With Finding Effective Treatments For SMA?

A mySMAteam Member asked a question 💭
posted June 17
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A mySMAteam Member

Genetech can help you with everysdi/risdiplam. All 3 mfrs have abundant resources and are eager to help you

posted July 4
A mySMAteam Member

We do not have health care. We have only thr medical mafia

posted July 2
A mySMAteam Member

Have you contacted your Biogen (for spinraza) family representative? I recommend working with the company who has the medicine you desire, they can help find solution. 66 year old male, sma3, spinraza for several years.

posted June 23
A mySMAteam Member

Yep. Because despite promises made, contacting MPs, Health Ministers, advocating with CURE SMA Canada etc, I continue to be declined to receive any treatment as a 38 year old female living in Alberta with Type 3 SMA.
Declined 9 times over the past 3 years and getting quite close to being non-ambulatory.

posted June 17
A mySMAteam Member

3 treatment available for all types and age. Check cure sma website for more information

posted June 17

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