That's a great question, and honestly, being 65 with SMA Type 2 is a remarkable milestone worth celebrating! 🎉
Exact statistics on how many people with SMA Type 2 are 65 or older aren't widely available, which makes it hard to give a precise number. What we do know is that historically, life expectancy for SMA Type 2 was Show Full Answer
That's a great question, and honestly, being 65 with SMA Type 2 is a remarkable milestone worth celebrating! 🎉
Exact statistics on how many people with SMA Type 2 are 65 or older aren't widely available, which makes it hard to give a precise number. What we do know is that historically, life expectancy for SMA Type 2 was estimated to be around the mid-20s. However, that was before modern treatments became available. With advances in drug therapies, better respiratory management, and nutritional support, people with SMA Type 2 are living longer than ever before.
This means that reaching 65 puts you in a truly pioneering group. The data simply hasn't caught up yet with what's now possible for people living well with SMA Type 2.
It's always a good idea to connect with a specialist who focuses on adult SMA care, as they may have more insight into this growing population.
August 17