So, this is a bit of a funny question, but I noticed on an SMA news forum a common complaint was the fact that many individuals with SMA said they looked much younger than their age and presumably treated like a child despite being an adult. I felt like this most of my life and only now that I am...well...old...have I only begun to view this as a positive and not a negative. Frankly, I never really connected my SMA with looking younger but now am wondering how common is this? Is it more a… read more
I’ve always been told that I look younger than I am. I thought it was hereditary since my sisters that do not have SMA look younger than their ages. I always joke and say I might look younger but I feel like I’m 90 because of SMA
Growing up, I was always a bit on the heavy side and, at times, overweight, but I can't tell you how many times people would put the word "little" in front of my name or kids would say mommy look at the little man and I would be like little? I could eat you, LOL
I've always had this problem, and I don't think it has to do with looks. I think it's unconscious bias. I don't know how often I'm treated like I have a mental disability, which seems to have worsened over the years. I don't know how often I would suggest something at work or a recommendation that would be ignored; then, I would see someone else bring up the same idea or suggestion and treat it like it's an ingenious idea. It's happened way too many times.
That's funny that you should mention looking younger than our age. Throughout my life I've had people say I looked younger than I was. I just thought they were being polite.
Actually outfit is affecting this a lot. I have been treated differently for different kinds of outfits. Anyways, I feel old since my muscles are hardly moving. Idc if I look 18 when feeling like 70 years old 😪
Interview: Dr. Strober on Combination Therapy for Babies With SMA
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