Ataxia Telangiectasia (AT) | mySMAteam

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Ataxia Telangiectasia (AT)
A mySMAteam Member asked a question 💭

Hi, does someone in the team has an idea about ataxia telangiectasia. It’s a rare neuro degenerative disease and not curable for the moment. I would like to know if there are any studies or tests in course. I’m personally following a young bit from Vietnam since 7 years. He 14 now. When I first saw him he was running and enjoying. Today he’s bed ridden and needs assistance for everything. Thank you

posted December 6, 2021
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A mySMAteam Member

Thank you Lisa

posted December 9, 2021

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