Connect with others who understand.

Sign up Log in
Resources
About mySMAteam
Powered By
Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Ataxia Telangiectasia (AT)

A mySMAteam Member asked a question 💭
Lyon, France

Hi, does someone in the team has an idea about ataxia telangiectasia. It’s a rare neuro degenerative disease and not curable for the moment. I would like to know if there are any studies or tests in course. I’m personally following a young bit from Vietnam since 7 years. He 14 now. When I first saw him he was running and enjoying. Today he’s bed ridden and needs assistance for everything. Thank you

December 6, 2021
View reactions
A mySMAteam Member

Thank you Lisa

December 9, 2021

Related content

View All

I'm 23 And I'm About To Have Surgery To Correct My Scoliosis

A mySMAteam Member asked a question 💭
Israelsdorf, DE

For Those Adults With SMA, How Old Are You And Which Type?

A mySMAteam Member asked a question 💭
Hastings, MN

Friend Diagnosed With Wernig-Hoffman SMA In 1967, No Genetic Testing. Is This Possible? Can SMA Meds Help Her?

A mySMAteam Member asked a question 💭
Gakona, AK

Already a Member? Log in