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Ataxia Telangiectasia (AT)
Hi, does someone in the team has an idea about ataxia telangiectasia. It’s a rare neuro degenerative disease and not curable for the moment. I would like to know if there are any studies or tests in course. I’m personally following a young bit from Vietnam since 7 years. He 14 now. When I first saw him he was running and enjoying. Today he’s bed ridden and needs assistance for everything. Thank you
Thank you Lisa
Does Anyone Know What The Outlook/prognosis Is For Adult-onset SMA?
Hi, My Son Saw His Neurologist Last Week. They Informed Us That SMA Affects The Bones Despite Previously Been Told It Doesn't.
What Activities In Terms Of Playing Does Kids Do? Also With Schooling What Type Of Table And Chair Do You Use?
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