Quick Links
Resources
About mySMAteam
Powered By
So...i know respiratory difficulties of all sorts are common with SMA. I can't speak specifically about respiratory acidosis.
Does scoliosis cause death
So...I don't want to paint an overly rosy picture. The healing after my surgery took months. It wasn't a pleasant experience, the healing was very painful and I had complications that led to a… read more
Do you use ventilators while sleeping? I apologize if my question bothers you
I have seen amazing results for kiddos with Neuro muscular diseases using the Trexo!
Im not a child,my doctor said in about 8years I will probably have to have surgery but it involves 3levels And it would be a major surgery so wants to hold off for awhile. Can you tell me why maybe
What kind of surgery?
This body shaming problem is for everyone i guess, not for people with sma only. But anyway I wanted to ask as a girl struggling with that feeling time to time
Well Personally I don't much like wearing anything that Clings to My Body, because then My Crooked Body really shows. So I tend to buy what I like, but I may buy just a tad bit larger just so it's not… read more
How do you earn money without loosing critical disability benefits and Medicare ? So, in many ways, I am very lucky. When I started needing attendant care, I did the math and there was no way I could earn enough money, keep working, and pay for attendant care. The programs in my state that cover attendant care very strictly require an individual have less than $2,000 in assets total (including such things as gold teeth, burial plots, etc) and not be employed. If not for my father's support… read more
I have been suffering from a lack of oxygen in the blood for two months, and I started using supplementary oxygen and I did not feel better. For those who went through this experience, what did you do during the lack of oxygen?
