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Are People With SMA Eligible for Moderna and Johnson & Johnson Booster Shots?
The Centers for Disease for Control and Prevention (CDC) released recommendations for Moderna and...
Posted 10/26/2021
Are People With SMA Eligible for Moderna and Johnson & Johnson Booster Shots?
The Centers for Disease for Control and Prevention (CDC) released recommendations for Moderna and...
Posted 10/26/2021
Spinal Muscular Atrophy Treatment and Therapy Options
Until recently, treatments for spinal muscular atrophy (SMA) could manage only symptoms. Doctors ...
Spinal Muscular Atrophy Treatment and Therapy Options
Until recently, treatments for spinal muscular atrophy (SMA) could manage only symptoms. Doctors ...
6 Facts About Pregnancy With SMA
If you’re living with spinal muscular atrophy (SMA), you can have a happy and healthy pregnancy, ...
6 Facts About Pregnancy With SMA
If you’re living with spinal muscular atrophy (SMA), you can have a happy and healthy pregnancy, ...
Review: ‘Born for Business’ Is a Satisfying Step Closer to Inclusion
Peacock’s “Born for Business” docuseries is a step in the right direction insofar as presenting d...
Posted 09/01/2021
Review: ‘Born for Business’ Is a Satisfying Step Closer to Inclusion
Peacock’s “Born for Business” docuseries is a step in the right direction insofar as presenting d...
Posted 09/01/2021
Pregnancy and Childbirth With SMA: My Experiences
Soon after my diagnosis of spinal muscular atrophy (SMA) type 3, I decided to start a family whil...
Posted 02/02/2022
Pregnancy and Childbirth With SMA: My Experiences
Soon after my diagnosis of spinal muscular atrophy (SMA) type 3, I decided to start a family whil...
Posted 02/02/2022
Developmental Milestones in Babies With SMA
If your baby has spinal muscular atrophy (SMA), you likely have questions about what to expect wh...
Developmental Milestones in Babies With SMA
If your baby has spinal muscular atrophy (SMA), you likely have questions about what to expect wh...
How To Appeal an Insurance Company Denial for SMA
If you are living with spinal muscular atrophy (SMA), you’re likely aware of the high costs assoc...
How To Appeal an Insurance Company Denial for SMA
If you are living with spinal muscular atrophy (SMA), you’re likely aware of the high costs assoc...
More Than Half of People Who Start Spinraza for SMA Stop Within 2 Years, Study Finds
Spinraza is intended as a lifelong treatment for SMA. However, less than 50 percent of people con...
Posted 12/15/2021
More Than Half of People Who Start Spinraza for SMA Stop Within 2 Years, Study Finds
Spinraza is intended as a lifelong treatment for SMA. However, less than 50 percent of people con...
Posted 12/15/2021
Staying Afloat Amidst a Pandemic and a Psychological Crisis
Imagine this.It’s March 13, 2020. I’m home for spring break during my junior year of college, ant...
Posted 08/25/2021
Staying Afloat Amidst a Pandemic and a Psychological Crisis
Imagine this.It’s March 13, 2020. I’m home for spring break during my junior year of college, ant...
Posted 08/25/2021
Spinal Muscular Atrophy Type 1
Spinal muscular atrophy (SMA) type 1 is the most common type of spinal muscular atrophy. SMA is a...
Spinal Muscular Atrophy Type 1
Spinal muscular atrophy (SMA) type 1 is the most common type of spinal muscular atrophy. SMA is a...