Connect with others who understand.

Sign up Log in
Quick Links
Q&A Treatments A-Z Help Center Guidelines Crisis Accessibility
Resources
Community Diagnosis & Information Managing Your Condition Treating SMA News Videos All Resources
About mySMAteam
What is This Site Terms of Use Privacy policy
Powered By

Top 10 search results for "parenting a child with sma" in Resources. To see all results and access other features, sign up for free.

Posts
Resources
Q&A
People
Groups
Causes of Spinal Muscular Atrophy
Spinal muscular atrophy (SMA) is a genetic neuromuscular disorder characterized by muscle weaknes...
Causes of Spinal Muscular Atrophy
Spinal muscular atrophy (SMA) is a genetic neuromuscular disorder characterized by muscle weaknes...
Living With SMA: Your Guide
Spinal muscular atrophy (SMA) presents unique challenges during each stage of life for people liv...
Living With SMA: Your Guide
Spinal muscular atrophy (SMA) presents unique challenges during each stage of life for people liv...
What Is the CHOP INTEND Motor Test for SMA?
For parents and caregivers of children with spinal muscular atrophy (SMA), every milestone is mom...
What Is the CHOP INTEND Motor Test for SMA?
For parents and caregivers of children with spinal muscular atrophy (SMA), every milestone is mom...
The Role of SMN1 and SMN2 Genes in Spinal Muscular Atrophy
Parents of children with spinal muscular atrophy (SMA) must learn a lot very quickly. Genetics is...
The Role of SMN1 and SMN2 Genes in Spinal Muscular Atrophy
Parents of children with spinal muscular atrophy (SMA) must learn a lot very quickly. Genetics is...
What To Know About SMA Prenatal Testing and Diagnosis
If you’re an expecting parent with a family history of spinal muscular atrophy (SMA), you may hav...
What To Know About SMA Prenatal Testing and Diagnosis
If you’re an expecting parent with a family history of spinal muscular atrophy (SMA), you may hav...
Understanding How SMA Gene Therapy Works
When a child is born with spinal muscular atrophy (SMA), a rare neuromuscular disorder, it’s the ...
Understanding How SMA Gene Therapy Works
When a child is born with spinal muscular atrophy (SMA), a rare neuromuscular disorder, it’s the ...
Your Child Is Newly Diagnosed With SMA. Now What?
Children can be diagnosed with spinal muscular atrophy (SMA) during infancy, childhood, or adoles...
Your Child Is Newly Diagnosed With SMA. Now What?
Children can be diagnosed with spinal muscular atrophy (SMA) during infancy, childhood, or adoles...
Parenting a Child With SMA
Most people aren’t familiar with spinal muscular atrophy (SMA) until it affects their child. Whet...
Parenting a Child With SMA
Most people aren’t familiar with spinal muscular atrophy (SMA) until it affects their child. Whet...
SMA Newborn Screening: Your Guide
Being a new parent is hard enough. And on top of that, as much as we try to research and prepare,...
SMA Newborn Screening: Your Guide
Being a new parent is hard enough. And on top of that, as much as we try to research and prepare,...
Tips for Parenting Teenagers With SMA
My parents were always pretty supportive throughout high school and college. Still, adolescence i...
Posted 12/01/2021
Tips for Parenting Teenagers With SMA
My parents were always pretty supportive throughout high school and college. Still, adolescence i...
Posted 12/01/2021