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Long-Term Data: Children With Type 1 SMA Keep Gaining Motor Skills After 3 Years on Evrysdi
New data shows that risdiplam (sold as Evrysdi) helps most infants with spinal muscular atrophy (...
Posted 06/15/2022
Long-Term Data: Children With Type 1 SMA Keep Gaining Motor Skills After 3 Years on Evrysdi
New data shows that risdiplam (sold as Evrysdi) helps most infants with spinal muscular atrophy (...
Posted 06/15/2022
More Than Half of People Who Start Spinraza for SMA Stop Within 2 Years, Study Finds
People who start taking Spinraza (nusinersen) to treat spinal muscular atrophy (SMA) may not alwa...
Posted 12/15/2021
More Than Half of People Who Start Spinraza for SMA Stop Within 2 Years, Study Finds
People who start taking Spinraza (nusinersen) to treat spinal muscular atrophy (SMA) may not alwa...
Posted 12/15/2021
Nasal Regurgitation With Spinal Muscular Atrophy
Nasal regurgitation — instances when food or fluids you’ve swallowed come up through your nose — ...
Nasal Regurgitation With Spinal Muscular Atrophy
Nasal regurgitation — instances when food or fluids you’ve swallowed come up through your nose — ...
Spinraza Alone May Be Better Than Combining It With Zolgensma To Treat SMA Type 1
A recent study has found that combining Zolgensma and Spinraza does not improve motor or respirat...
Posted 02/23/2022
Spinraza Alone May Be Better Than Combining It With Zolgensma To Treat SMA Type 1
A recent study has found that combining Zolgensma and Spinraza does not improve motor or respirat...
Posted 02/23/2022
Interview: Dr. Strober on Combination Therapy for Babies With SMA
Many parents of children with spinal muscular atrophy (SMA) have questions about combination ther...
Posted 09/21/2021
Interview: Dr. Strober on Combination Therapy for Babies With SMA
Many parents of children with spinal muscular atrophy (SMA) have questions about combination ther...
Posted 09/21/2021
Scoliosis Surgery in Kids With SMA Can Cause Serious Complications, Research Finds
Corrective surgery for scoliosis in children with spinal muscular atrophy (SMA) type 1 can lead t...
Posted 01/18/2022
Scoliosis Surgery in Kids With SMA Can Cause Serious Complications, Research Finds
Corrective surgery for scoliosis in children with spinal muscular atrophy (SMA) type 1 can lead t...
Posted 01/18/2022
Spinal Muscular Atrophy Type 3
Spinal muscular atrophy (SMA) type 3 is a rare neuromuscular disorder characterized by hypotonia,...
Spinal Muscular Atrophy Type 3
Spinal muscular atrophy (SMA) type 3 is a rare neuromuscular disorder characterized by hypotonia,...
Implanted Catheter May Ease Delivery of Spinraza for SMA, but Approach Comes With Risks
People with spinal muscular atrophy (SMA) often have spine deformities that make it difficult to ...
Posted 11/23/2021
Implanted Catheter May Ease Delivery of Spinraza for SMA, but Approach Comes With Risks
People with spinal muscular atrophy (SMA) often have spine deformities that make it difficult to ...
Posted 11/23/2021
What Is Kugelberg-Welander Disease?
Imagine a condition that gradually weakens the muscles you rely on every day to walk, run, and li...
What Is Kugelberg-Welander Disease?
Imagine a condition that gradually weakens the muscles you rely on every day to walk, run, and li...
Chemical Change May Lead To Safer, More Effective SMA Treatments
In a recent study, researchers made a chemical change to a molecule used to treat spinal muscular...
Posted 08/23/2021
Chemical Change May Lead To Safer, More Effective SMA Treatments
In a recent study, researchers made a chemical change to a molecule used to treat spinal muscular...
Posted 08/23/2021