... Have you found any therapies that support healthy breathing? Share your experience in the comments below, or start a conversation by posting on your Activities page. ...
... Have you found any therapies that support healthy breathing? Share your experience in the comments below, or start a conversation by posting on your Activities page. ...
... References Spinal Muscular Atrophy — Orphanet Journal of Rare Diseases Clinical Guidelines — Cure SMA Spinal Muscular Atrophy (SMA) Medical Management — Muscular Dystrophy Association Spinal Muscular Atrophy: Diagnosis and Management in a New Therapeutic Era — Muscle & Nerve Breathing Basics — Cure SMA Breathing Risks and Care — Cure SMA Nutrition — ...
... References Spinal Muscular Atrophy — Orphanet Journal of Rare Diseases Clinical Guidelines — Cure SMA Spinal Muscular Atrophy (SMA) Medical Management — Muscular Dystrophy Association Spinal Muscular Atrophy: Diagnosis and Management in a New Therapeutic Era — Muscle & Nerve Breathing Basics — Cure SMA Breathing Risks and Care — Cure SMA Nutrition — ...
... These included: All of the participants who were on ventilation when they started treatment remained clinically stable, maintaining a similar level and type of ventilatory support. The four infants who were not on ventilation needed to start ventilation. Two infants died from acute respiratory failure. One infant sustained a severe brain injury. ...
... These included: All of the participants who were on ventilation when they started treatment remained clinically stable, maintaining a similar level and type of ventilatory support. The four infants who were not on ventilation needed to start ventilation. Two infants died from acute respiratory failure. One infant sustained a severe brain injury. ...
... References Longitudinal Changes in Respiratory and Upper Limb Function in a Pediatric Type III Spinal Muscular Atrophy Cohort After Loss of Ambulation — Muscle and Nerve Breathing Risks and Care — Cure SMA ...
... References Longitudinal Changes in Respiratory and Upper Limb Function in a Pediatric Type III Spinal Muscular Atrophy Cohort After Loss of Ambulation — Muscle and Nerve Breathing Risks and Care — Cure SMA ...
... It can be difficult for children who rely on invasive ventilation to attend school or be social. However, invasivebreathingsupport may be very helpful for some children with SMA and severe breathing problems. Equipment That Helps With CoughingSometimes, mucus naturally fills your lungs or airways. ...
... It can be difficult for children who rely on invasive ventilation to attend school or be social. However, invasivebreathingsupport may be very helpful for some children with SMA and severe breathing problems. Equipment That Helps With CoughingSometimes, mucus naturally fills your lungs or airways. ...
... Whereas an invasivebreathing-support procedure, like a tracheostomy, might expose the individual to infection, BiPAP has a lower risk of complications. The main problems that people may experience while using a BiPAP device involve the face mask. It may fit too tightly, causing discomfort or skin damage where it sits on the face. ...
... Whereas an invasivebreathing-support procedure, like a tracheostomy, might expose the individual to infection, BiPAP has a lower risk of complications. The main problems that people may experience while using a BiPAP device involve the face mask. It may fit too tightly, causing discomfort or skin damage where it sits on the face. ...
... An endotracheal tube may be used for a few days or weeks before causing irritation.If you need invasive ventilation support for an extended period, your doctor may recommend creating a tracheostomy — a small, surgical hole in the throat. The doctor can then put a breathing tube directly into the trachea. ...
... An endotracheal tube may be used for a few days or weeks before causing irritation.If you need invasive ventilation support for an extended period, your doctor may recommend creating a tracheostomy — a small, surgical hole in the throat. The doctor can then put a breathing tube directly into the trachea. ...
... with spinal muscular atrophy, get advice, and find support from others who understand.Have you or a loved one developed complications from SMA? ...
... with spinal muscular atrophy, get advice, and find support from others who understand.Have you or a loved one developed complications from SMA? ...
... Studies indicate that growing rods can be an effective treatment, reducing psychological stress for children and families.Join the ConversationOn mySMAteam, people share their experiences with spinal muscular atrophy, get advice, and find support from others who understand.Have you or a loved one been diagnosed with SMA? ...
... Studies indicate that growing rods can be an effective treatment, reducing psychological stress for children and families.Join the ConversationOn mySMAteam, people share their experiences with spinal muscular atrophy, get advice, and find support from others who understand.Have you or a loved one been diagnosed with SMA? ...
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