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Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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What Day Is It?
A mySMAteam Member asked a question 💭
posted August 1
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A mySMAteam Member

I don’t like when people call me stupid all your life. It still hurt for a long time. I have dream about till. I was told from friends that you are not stupid. But you are physical strong.

posted August 29
What Is The Life Expectancy For SMA Type 1?
A mySMAteam Member asked a question 💭
posted July 31
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A mySMAteam Member

My friend told me I am old than the planet Pluto. That was funny 🤣🤣🤣🤣🤣

posted August 12
What Is One Skill You'd Love To Possess Instantly And The Reason Behind Your Desire?
A mySMAteam Member asked a question 💭
posted July 27
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A mySMAteam Member

If I could instantly acquire one skill, it would be the ability to speak multiple languages fluently. My desire is because I've always been fascinated by different cultures and connecting with people… read more

posted July 28
What’s Your Top Survival Tip For Managing SMA In The Summer Heat?
A mySMAteam Member asked a question 💭
posted July 17
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A mySMAteam Member

I've tried many things but nothing close to working yet. It would be amazing to have the safe tech (along with a big enough market) to get products like these for golf carts and motorcycles for our… read more

posted September 12
I Have SMA Type 4 What Do I Tell My Doctors?
A mySMAteam Member asked a question 💭
posted July 15
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A mySMAteam Member

I always share my SMA diagnosis with my doctors. I usually have to explain what it is and how I’m affected by it. I believe it’s important for them to know everything about me in order to understand… read more

posted July 19
Shortness Of Breath At Times
A mySMAteam Member asked a question 💭

I have scoliosis, but I haven't had any breathing problems. I had hip surgery in 2020 and since that day I can't sit much because of the pain. This year I started to feel short of breath when sitting and lying on my right side only, sometimes sitting or lying in the same position I used to feel short of breath. I don't feel short of breath at all. What could be the cause of my shortness of breath? Do any of you have this experience? Most of my time I lie down because I can't sit up much… read more

posted July 13
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A mySMAteam Member

It scares me that I did not feel shortness of breath before the surgery. Why did shortness of breath appear until after the surgery?

posted August 1
This Will Be Multiple Questions Answers Would Be Appreciated.
A mySMAteam Member asked a question 💭

1 has anyone have any experience with toilet lifts good or bad?
2 what type of vehicle do you drive if you can?

posted July 7
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A mySMAteam Member

Ive got my toilet at 23 in now and its getting hard to get up from. That nautilus looks cool.

posted July 7
How We Can Help The Old Generation With New Tribology?
A mySMAteam Member asked a question 💭
posted July 1
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What's Up With You Gurlllll? How Are You Feeling Today?!
A mySMAteam Member asked a question 💭
posted July 1
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Shortness Of Breath
A mySMAteam Member asked a question 💭

I have scoliosis, I am 21 years old. And I have scoliosis since childhood. This year, I started to feel short of breath when sitting and sometimes when lying on the back. Does scoliosis cause death in cases of spinal muscular atrophy? I only use PIBAB while I sleep.

posted June 28
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A mySMAteam Member

Yes

posted June 28
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