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SMA

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Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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What Aspect Of SMA Worries You The Most?

What Aspect Of SMA Worries You The Most?

A mySMAteam Member said:

Progression in an area with little medical help or knowledge. I have seen decline in even a years time. Trying PT to keep what I have

posted 9 days ago

Tell Me Your Favorite Movie By Quoting A Line From It.

Tell Me Your Favorite Movie By Quoting A Line From It.

My favorite movie quote is, 'We are the music-makers, and we are the dreamers of dreams."

A mySMAteam Member said:

Every time a bell rings an angel gets its wings.

posted about 2 months ago

What Do You Wish Your Doctor And You Had More Time To Discuss?

What Do You Wish Your Doctor And You Had More Time To Discuss?

A mySMAteam Member said:

Real treatment options to keep the level of mobility I have. I am in a medically challenged area.

posted 9 days ago

Who Or What Source Of Information On SMA Has Been Most Helpful To You?

Who Or What Source Of Information On SMA Has Been Most Helpful To You?

A mySMAteam Member said:

Just a bit of online research and trying to put into action. Flint rehab has some great info on a lot of areas of spinal cord damage.

posted 9 days ago

As Am Adult With SMA, How Does One Deal With A Caregiver Who Treats You Like A Child Especially When Rely On Them For Basic Needs?

As Am Adult With SMA, How Does One Deal With A Caregiver Who Treats You Like A Child Especially When Rely On Them For Basic Needs?

I am 40+ years old, have held jobs, am reasonably intelligent, but I still look like a teenager aside from a few grey hairs. My dad is 83, a little hard of hearing. My attendant, the only reliable attendant I can find in the entire state, is nearly the same age, is physically in much better shape, but is even harder of hearing. So I was dealing with my father who gets very grouchie when he hasnt eaten trying to help him with cooking which he doesnt know how to do and caregiver of course walks… read more

A mySMAteam Member said:

Totally understand how that goes with unreliable care attendants, one's that you really don't want to be alone with or need to be either, or one's that actually really show up early or on time every… read more

posted about 2 months ago

What Three Items Are Most Indispensable To You, And Why?

What Three Items Are Most Indispensable To You, And Why?

A mySMAteam Member said:

My walker and lifting recliner make independent life at home possible and my scooter for outdoors.

posted 2 months ago
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