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Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
223 questions

Could You Share Any Dietary Changes And Tips That Have Helped With SMA?

A mySMAteam Member asked a question 💭
A mySMAteam Member

I have lots of digestive issues, and quite honestly until I joined this SMA team, none of my doctors ever mentioned SMA contributing to digestive issues despite seeing many specialist and as a result… read more

posted March 25

What Gene Causes SMA?

A mySMAteam Member asked a question 💭

Is SMA The Cause Of My Tiredness? It Is Hard Work Doing Anything And Walking. It Would Make Sense That That Is The Reason For My Tiredness.

A mySMAteam Member asked a question 💭
A mySMAteam Member

Ok Fred I will make more effort thanks

posted March 18

How Do Beverages With Caffeine Affect Your SMA?

A mySMAteam Member asked a question 💭
A mySMAteam Member

I honestly think I am immune from the effects of caffeine. I can literally fall asleep with a straw in my mouth after drinking half a mug of coffee ...but I started with coffee when I was very young… read more

posted March 21

I Was Just Denied By My Insurance My Request For A Hoyer Lift That We Are Going To Desperately Need Soon. What Should I Do?

A mySMAteam Member asked a question 💭

On Wednesday, February 7, 2024 at 03:49:33 PM EST, Disability Coordinator wrote
Good afternoon
I wanted to let you know that I was able to speak with the provider we requested the hoyer through and they informed me that insurance decline the request and are unable to provide you the equipment. If you have any questions let me know. I will begin looking to see if there is a place to get one on loan.
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My Reply
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I don't understand how I can be denied ...the environmental assessment I had… read more

A mySMAteam Member

Hi Eric, really sorry to hear that about,and yes it is ridiculous as you say. If they don't get you through refusal, they seem to get you with pricing which here in Oz is ridiculous! Trust your appeal… read more

posted February 10

Treatment Kab Aayega Sma Type 3 Ka

A mySMAteam Member asked a question 💭

What Lessons From Your SMA Experience Are You Applying In 2024?

A mySMAteam Member asked a question 💭
A mySMAteam Member

I'm a caregiver. Trying not to be a caretaker. Living into the fact that the sole thing any of us can control is our response to the world around us.

posted April 27

How Does The Cold Affect Your SMA?

A mySMAteam Member asked a question 💭
A mySMAteam Member

I move to South America for the weather and cost of living. We do not do well in cold!

posted February 5

Sir If Any Updates Regarding The Complete Cure Of SMA Please Kindly Mail To My Account. "Service To Man Is Service To God"

A mySMAteam Member asked a question 💭

Does Anyone Know A Good Attorney In Texas To Help With Wrongful Eviction, Defamation Of Character And Many Other Violations Against Disabled

A mySMAteam Member asked a question 💭
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