Questions & Answers

My daughter has been dealing with constipation lately. Wasn’t sure if it is Risdiplam related or not. When she does poop and it’s soft it burns her bottom. She will get a raw butt quick. Any suggestions on how to help soften her stool? She turned one in December. She can eat soft solid foods by mouth and drink liquids by mouth. We have a gtube but do not currently use it.

Baclophen helps, are there any essential oils, to help the spasms to subside?

Hiii! You see, I have sma 2 and my neck is a little weak, I have been looking for a comfortable headrest for a long time but I have not been able to find one. They are all too big or do not reach the back of my neck, especially because my backrest is too high and I have been told that it can not be lowered. At home I have no problems but to go out in the street or to travel by car I have to take one of those neck pillows that are used to sleep on airplanes. I would like to replace it with… read more

Pennsyvania peep what neurologist do you use and where are they im looking for a dr in pa so my insurance will be in network to pay?

The doctor said to do balance and strength exercises but that wont help with atrophy. Do I visit a neurologist for advice or give up doing things in the house like preparing meals and washing up.