Hey Everybody! How Often Do Y’all Go To PT? And What Are Your PT Routines Like?
I also go twice a week but I switch to aquatic therapy in the summer. When I’m on hiatus, I try to do my exercises at home.
I Have Had 3 Falls In 5 Days. My Legs Collapse Without Warning And I Crash To The Ground. I Am Frightened. I Don’t Know What To Do.
The doctor said to do balance and strength exercises but that wont help with atrophy. Do I visit a neurologist for advice or give up doing things in the house like preparing meals and washing up.
What Is One Skill You'd Love To Possess Instantly And The Reason Behind Your Desire?
If I could instantly acquire one skill, it would be the ability to speak multiple languages fluently. My desire is because I've always been fascinated by different cultures and connecting with people… read more
I’ve Had Scoliosis With A Pelvic Tip As An Early Teenager, And Was Diagnosed With SMA 4 Only When I Complained Of Weakness In My 50s.
I am 80 now and have noticed arm weakness and trouble climbing stairs for the past 10 years. Could I have SMA3 and not SMA4?
What's The Worst Age For SMA1
It can be heartbreaking to remember what was as we deal with what is and the fear of what the future might hold. Love support and hope is sometimes all we have. I’m comforted with knowing I did the… read more
I Do Balance And Stretching Exercises Regularly. Plus Rise A Recumbent Bike In Winter Ebike In Summer For Balance And Strength. Exercises?
My Baby Is Suffering With SMA TYPE1,she Is Now 8 Month Old,frequently Suffering With Cold And Breathing Problem,how To Minimize
Gene Therapy
I was wondering is there anyone here that knows someone who or have had zolgensma gene therapy?
Can Spinraza And Evrysdi Be Taken Together ?
I doubt your dr would prescribe both at once
Any Idea When Risdipalm Is Going To Be Available To Type 4 And Does Anyone Regret Taking In Past?