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SMA
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Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice.
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For Those Adults With SMA, How Old Are You And Which Type?
On A Day When Your Symptoms Bother You, How Do You Find Relief?
What's The Best And Worst SMA Advice You Have Received?
Name The One Thing You Find Most Challenging About SMA.
Can A 23 Year Old Take The At Home Drug For SMA?
Can A 23 Year Old Take The At Home Drug For SMA?
My son is almost 23 and an SMA Type 1. He has not wanted to do the spinraza but we are interested in the at home drug but not sure if people his age have taken it and what the outcomes have been. Any info would be much appreciated!
What Creative Life Hacks, Tips, Or Tricks Do You Have, Big Or Small, That Make Your Everyday Life Easier?
What Phrase Or Mantra — Such As “This Too Shall Pass” — Do You Tell Yourself When Things Feel Tough?
What Phrase Or Mantra — Such As “This Too Shall Pass” — Do You Tell Yourself When Things Feel Tough?
A mySMAteam Member said:
Somebody else probably has it worse than you!
posted about 1 month ago
