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SMA

Questions + Answers

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Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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For Those Adults With SMA, How Old Are You And Which Type?

For Those Adults With SMA, How Old Are You And Which Type?

posted over 2 years ago
A mySMAteam Member said:

An old enough that I an not going to say my age, but am older than I look. People often guess my age as being ten and twenty years younger then I actually am which I am good with although it use to… read more

posted about 2 months ago

Name The One Thing You Find Most Challenging About SMA.

Name The One Thing You Find Most Challenging About SMA.

posted 10 months ago
A mySMAteam Member said:

Over the years the slow progressive loss of functionality creates a great deal of grieving over time. "Another thing lost..."

posted 10 months ago

Can A 23 Year Old Take The At Home Drug For SMA?

Can A 23 Year Old Take The At Home Drug For SMA?

My son is almost 23 and an SMA Type 1. He has not wanted to do the spinraza but we are interested in the at home drug but not sure if people his age have taken it and what the outcomes have been. Any info would be much appreciated!

posted over 1 year ago
A mySMAteam Member said:

Hi 👋🏼. I’m 33 years old and take Evrysdi the oral medication for SMA. It is approved for all ages and all stages of SMA. I have been on it for 3 months. I feel my side effects have been minimal… read more

posted 10 months ago

Name The Biggest Physical Challenge For You?

Name The Biggest Physical Challenge For You?

posted 8 months ago
A mySMAteam Member said:

Where I live if a crater fell out of the sky and hit our hospital our town would not have lost a thing! It is a JOKE!!

posted 6 months ago

Have You Experienced True Love, Requited Or Otherwise? How Did It Turn Out?

Have You Experienced True Love, Requited Or Otherwise? How Did It Turn Out?

posted 2 months ago
A mySMAteam Member said:

Yes I have experienced true love. I had a child with one of my loves 26 years ago. Last sept I married my love. I am lucky to have experienced love more than once.

posted 2 months ago
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