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Distal Type 4. Male 75 y/o. Diagnosed 13 years ago. My scooter is my life line. My wife is my life. Our doggie comes in a close second.
Being so tired. I have limited amount i can do in a day. I am very grateful I have a good husband to do so much in the household.
My son play with my Dogs and watch a lot of funny movies
Resting is the only aid some days.
Just be you fight
My son is almost 23 and an SMA Type 1. He has not wanted to do the spinraza but we are interested in the at home drug but not sure if people his age have taken it and what the outcomes have been. Any info would be much appreciated!
Where I live if a crater fell out of the sky and hit our hospital our town would not have lost a thing! It is a JOKE!!
The doctor said to do balance and strength exercises but that wont help with atrophy. Do I visit a neurologist for advice or give up doing things in the house like preparing meals and washing up.
I understand your concerns. My biggest fear is falling. After fracturing my hip and knee from a bad fall, I started using a platform walker. It helps me to walk without losing my balance. It also… read more
So cool, @A mySMAteam Member! 😁
Have you noticed any differences when taking them or missing a dose?
I take a High Potency Vitamin D for My Immune system and I take Calcium for My Bones. I also take a Good Multivitamin. My Mom suggested taking Vitamins when I was in My early 20's and I've been taking… read more
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