Quick Links
Resources
About mySMAteam
Powered By
I am 72 with ALS type 3
The doctor said to do balance and strength exercises but that wont help with atrophy. Do I visit a neurologist for advice or give up doing things in the house like preparing meals and washing up.
I've used a scooter for decades now. The tiller gives us hand hold for all sorts of things, standing or transferring. My scooter has lift seat which helps immensely when I need to transfer to taller… read more
SMA is very frustrating as we become more and more limited. I miss walking.
My son play with my Dogs and watch a lot of funny movies
Resting is the only aid some days.
Just be you fight
My son is almost 23 and an SMA Type 1. He has not wanted to do the spinraza but we are interested in the at home drug but not sure if people his age have taken it and what the outcomes have been. Any info would be much appreciated!
I keep my self busy with my dog. It help me in a lot way. We got outside he listen to me. When I tell him to stop. He will check on me.
So...part of me knows this is a ridiculous question, but I am hoping that maybe there have been changes I am unaware of. It is that dreaded time when I have to begin to apply for a new wheelchair.
It use to be I would look forward to the process. Use to be every new model of wheelchair would be better, drive further, be faster, overall better. That has not been the case however the last twenty years. The wheelchair I own twenty years ago was in every way better than the one ten years ago… read more
Where I live if a crater fell out of the sky and hit our hospital our town would not have lost a thing! It is a JOKE!!
Continue with Facebook
Sign up with your email