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SMA

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Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Name The One Thing You Find Most Challenging About SMA.

Name The One Thing You Find Most Challenging About SMA.

A mySMAteam Member said:

Over the years the slow progressive loss of functionality creates a great deal of grieving over time. "Another thing lost..."

posted 5 months ago

Can A 23 Year Old Take The At Home Drug For SMA?

Can A 23 Year Old Take The At Home Drug For SMA?

My son is almost 23 and an SMA Type 1. He has not wanted to do the spinraza but we are interested in the at home drug but not sure if people his age have taken it and what the outcomes have been. Any info would be much appreciated!

A mySMAteam Member said:

Hi 👋🏼. I’m 33 years old and take Evrysdi the oral medication for SMA. It is approved for all ages and all stages of SMA. I have been on it for 3 months. I feel my side effects have been minimal… read more

posted 5 months ago

Name The Biggest Physical Challenge For You?

Name The Biggest Physical Challenge For You?

A mySMAteam Member said:

Where I live if a crater fell out of the sky and hit our hospital our town would not have lost a thing! It is a JOKE!!

posted about 1 month ago

What Is Your Hobby?

What Is Your Hobby?

A mySMAteam Member said:

I have tons of hobbies. I am an artist, so currently I am preparing my artwork for the June 4th show at Art in the Park in Westminster Maryland. i am also a novice inventor. i just started with 3D… read more

posted 8 days ago

What Are You Really Proud Of?

What Are You Really Proud Of?

A mySMAteam Member said:

I'm proud that I continue to advocate for myself and that I haven't dropped out of college😂

posted 4 months ago
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