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Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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For Those Adults With SMA, How Old Are You And Which Type?
A mySMAteam Member asked a question 💭
posted March 23, 2020
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A mySMAteam Member

Distal Type 4. Male 75 y/o. Diagnosed 13 years ago. My scooter is my life line. My wife is my life. Our doggie comes in a close second.

posted January 11
Name The One Thing You Find Most Challenging About SMA.
A mySMAteam Member asked a question 💭
posted November 22, 2021
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A mySMAteam Member

Being so tired. I have limited amount i can do in a day. I am very grateful I have a good husband to do so much in the household.

posted February 20
Everyone Feels Sad Or Depressed Sometimes. What Do You Do To Boost Your Mood When You’re Feeling Down?
A mySMAteam Member asked a question 💭
posted May 30, 2022
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A mySMAteam Member

My son play with my Dogs and watch a lot of funny movies

posted June 23, 2022
On A Day When Your Symptoms Bother You, How Do You Find Relief?
A mySMAteam Member asked a question 💭
posted April 21, 2022
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A mySMAteam Member

Resting is the only aid some days.

posted May 17, 2022
What's The Best And Worst SMA Advice You Have Received?
A mySMAteam Member asked a question 💭
posted January 18, 2022
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A mySMAteam Member

Just be you fight

posted February 19, 2022
Can A 23 Year Old Take The At Home Drug For SMA?
A mySMAteam Member asked a question 💭

My son is almost 23 and an SMA Type 1. He has not wanted to do the spinraza but we are interested in the at home drug but not sure if people his age have taken it and what the outcomes have been. Any info would be much appreciated!

posted April 22, 2021
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A mySMAteam Member

Hi 👋🏼. I’m 33 years old and take Evrysdi the oral medication for SMA. It is approved for all ages and all stages of SMA. I have been on it for 3 months. I feel my side effects have been minimal… read more

posted December 16, 2021
Name The Biggest Physical Challenge For You?
A mySMAteam Member asked a question 💭
posted January 20, 2022
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A mySMAteam Member

Where I live if a crater fell out of the sky and hit our hospital our town would not have lost a thing! It is a JOKE!!

posted April 11, 2022
I Have Had 3 Falls In 5 Days. My Legs Collapse Without Warning And I Crash To The Ground. I Am Frightened. I Don’t Know What To Do.
A mySMAteam Member asked a question 💭

The doctor said to do balance and strength exercises but that wont help with atrophy. Do I visit a neurologist for advice or give up doing things in the house like preparing meals and washing up.

posted January 18
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A mySMAteam Member

I understand your concerns. My biggest fear is falling. After fracturing my hip and knee from a bad fall, I started using a platform walker. It helps me to walk without losing my balance. It also… read more

posted January 25
What Creative Life Hacks, Tips, Or Tricks Do You Have, Big Or Small, That Make Your Everyday Life Easier?
A mySMAteam Member asked a question 💭
posted March 24, 2022
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A mySMAteam Member

So cool, @A mySMAteam Member! 😁

posted April 4, 2022
Which Supplements Or Vitamins Do You Take, And Why?
A mySMAteam Member asked a question 💭

Have you noticed any differences when taking them or missing a dose?

posted August 22, 2022
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A mySMAteam Member

I take a High Potency Vitamin D for My Immune system and I take Calcium for My Bones. I also take a Good Multivitamin. My Mom suggested taking Vitamins when I was in My early 20's and I've been taking… read more

posted October 13, 2022
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