What you're experiencing after a very active couple of days is very common with SMA. There are actually two types of fatigue that come into play here — muscle fatigue (fatigability) and perceived fatigue — and both are widely reported by people with SMA.
Muscle fatigue is a measurable decline in muscle function that Show Full Answer
What you're experiencing after a very active couple of days is very common with SMA. There are actually two types of fatigue that come into play here — muscle fatigue (fatigability) and perceived fatigue — and both are widely reported by people with SMA.
Muscle fatigue is a measurable decline in muscle function that happens over time and with activity. Perceived fatigue is that overwhelming sense of exhaustion and tiredness that can hit even when you've been resting well and eating right. The key thing to understand is that pacing yourself is really important. Here are some strategies that may help:
- Take breaks and rest when needed to prevent fatigue from getting worse
- Modify your daily schedule around your energy levels
- Sleep well — comfortable positioning with extra pillows or rolled towels can help muscles and joints fully relax
- Work with a physical therapist to find an activity level that works for your body
- Talk to your doctor about medications like Spinraza (nusinersen), which has been shown to help reduce fatigue in people with SMA
It's a good idea to let your doctor know how you're feeling after active days so they can help you find the right balance. You're definitely not alone in this! 💙
AI-generated responses are not a substitute for medical advice. These services are not intended to
diagnose, treat, or cure any condition or disease. Always ask your doctor about specific health concerns.
Fatigue and Spinal Muscular Atrophy
June 15
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