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Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Any idea when Risdipalm is going to be available to type 4 and does anyone regret taking in past?

A mySMAteam Member asked a question 💭
Scotland, AR
November 9, 2024
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Hi My baby 11 months old and having type 1 SMA. I need guidance from someone who is already dealing with it about treatment.

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With type 4, when do you know to give in to it and stop work, or is this a daft question?

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Hi,my son(14) has SMA-LED. He is having Achilles Tendon lengthening surgery for toe walking. Anyone go thru this surgery? Was it successful?

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