Me either, it has its challenges but it definitely has made me more grateful for my blessings!!

The one and only thing that I would change would be the fact that it took my husband at such a young age(47) very quickly and unexpectedly. I would have been very adamant about the doctors approach and p.t. and o.t. when we were younger . But other than that I absolutely cherished the life I had with him and I adored him,,sorry I still just adore him and am obsessed with him. Everything I have done and still do was and is for that amazingly beautiful man who is the strongest person I've ever had the privilege and honor of knowing and I was blessed extra and got to be the one he chose as HIS PERSON!!

SMA sucks bilut there other MDs that are way worse but don't think I don't miss golf. :)

Pretty much the same way I feel. I watch people take things for granted ( running and playing or simply standing to stretch. Etc.) While I was blessed to keep a lot of my abilities into my 30's, I know many who haven't. I really think when you live with suffering you are more receptive to others pain and more empathetic. But I know God has a plan for all of us.❤️

I am thankful for the life I have. No doubt a life without SMA would be amazing but after having it (SMA) my whole life I am not sure if I would be who I am without it. Would I be as observant to others who need help? Would I be the problem solving overcomer that I currently am? Granted I would love to have the strength I had as a child but as they say, wish in one hand and… well you get the idea. Lol.