long term data children with type 1 sma keep gaining motor skills after 3 years on evrysdi and spinal muscular atrophy | mySMAteam

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Top 10 Search Results for "long term data children with type 1 sma keep gaining motor skills after 3 years on evrysdi"

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Which Is Better For Treating Sma Disease, Is Evrysdi Or Spinraza?
A mySMAteam Member asked a question 💭

Which is better for treating sma disease, is Evrysdi or Spinraza?

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Treatment Kab Aayega Sma Type 3 Ka
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Anyone With Type 1 Sma Child Who Got Zolgensma?
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A mySMAteam Member

Yes, at 8 months old. His legs started moving in 2 days. He can now swallow, stand independently, walk short distances, and started riding a bike with training wheels. My general answer is to reply… read more

Medicare, Medicaid, Medicare Advantage,Medicare Special Needs Plans,glasses...???
A mySMAteam Member asked a question 💭

One day last week I asked my attendant as usual to clean my eye glasses before putting them on me. They were still really foggy...as an artist , I really rely on my vision, so he cleaned them again . Still foggy, tried glass cleaner, lens cleaner etc. After an argument in which I insisted that I was not in fact going blind, I went to the eye glass store and discovered that I need new glasses...the scratch guard wore off my glasses...now everything is foggy. I thought scratch guard was… read more

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A mySMAteam Member

Thanks. I know there are Medicare Advantage plans that cover eye glasses...but apparently regular Medicare does not and it appears Medicaid only to age 21. The problem is I am not sure if my… read more

Are There Any Moms Who Had Been Diagnosed Before They Had Children?
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A mySMAteam Member

I have SMA3
I’m 36 and was diagnosed at age 5. I just had my first baby almost 5 months ago. It’s tough. So worth it but I’m struggling during the day with him due to lack of strength and covid… read more

I Have SMA Type 3 And Have A Torn Rotator Cuff. I Am Wondering If Anyone Has Dealt With This Specific Injury While Also Having SMA?
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A mySMAteam Member

Working at it in PT now. Getting some relief 🙌🏻. I was just curious if anyone had some quick fixes 🤣. Unfortunately I think this will just be a long term thing I’m dealing with.

Scoliosis
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Does scoliosis cause death

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A mySMAteam Member

So...I don't want to paint an overly rosy picture. The healing after my surgery took months. It wasn't a pleasant experience, the healing was very painful and I had complications that led to a… read more

What Gene Causes SMA?
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Anxiety Experiences With Sma Is Intrinsically Linked To The Condition Not As A Result Of, Is Comes With A Fatigue Totally Different
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Spinal Muscular Atrophy Pathophysiology Read Article...
Is Ridisplam Effective For SMA-LED1 Disease?
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What Is SMA-LED? Read Article...