spinal muscular atrophy life expectancy whats known and whats unknown and spinal muscular atrophy | mySMAteam
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When Does A Patient With Spinal Muscular Atrophy Need A Laryngeal Breathing Tube?
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How Common Is Respiratory Acidosis Among Those Who Have Spinal Muscular Atrophy?
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A mySMAteam Member

So...i know respiratory difficulties of all sorts are common with SMA. I can't speak specifically about respiratory acidosis.

Does Anyone On Here Use A Robotic Walker? In Specific We Are Looking At Getting The Trexo.
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A mySMAteam Member

I have seen amazing results for kiddos with Neuro muscular diseases using the Trexo!

How To Spend A Day？
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Hi guys , I am 22 years old.I live in the countryside of Malaysia.I'm here today to ask a small question. but my english level quite bad, hope you all who read this post can take some patient to understand my voice.

Since I didn't have a university, I only finished my second year of high school.I have graduated for almost four years，but I never know how my future will happen .To be honest, I always thought I was an ordinary person, because I went to an ordinary high school, and I only realized… read more

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A mySMAteam Member

My heart goes out to you. I find it hard to imagine being in your situation. Are there care facilities available for you?

What Gene Causes SMA?
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Lack Of Oxygen In The Blood
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I have been suffering from a lack of oxygen in the blood for two months, and I started using supplementary oxygen and I did not feel better. For those who went through this experience, what did you do during the lack of oxygen?

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I'm A Life Partner Caregiver Team Member. Trying To Get An Intermittent LOA. Doctor For Tammy Refused To Sign Unless She Fired Her PCA. ??
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SMA Adults, What Have Your Been Your Greatest Accomplishments And Some Struggles You Have Had.
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Growing up, at what age did you understand or had been told you have not something wrong with you but that you have special muscles unlike the other kids? (Thats what we call connors condition, to help his older 8 yr old brother understand) connor is type 1 and is currently 7 months old. Recvd zolgemsa on halloween. Didnt finish our last loading dose of spinraza. If you currently do maintaince dosing of spinraza has it been successful for you? Pro? Cons? Effectiveness still? At what age did you… read more

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A mySMAteam Member

Thank you so much for shared your story! I’m confused as to what I’m hearing about the Spinraza treatment...Isn’t that treatment extremely hard to get because of price? I don’t mean to pry but how did… read more

Does Anyone Know A Good Attorney In Texas To Help With Wrongful Eviction, Defamation Of Character And Many Other Violations Against Disabled
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Is There Any Research On The Interaction Between Antidepressants And Either Evrysdi Or Spinraza?
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Understanding Depression and Spinal Muscular Atrophy Read Article...