What's The Best And Worst SMA Advice You Have Received?
Best Advice: Each day is a new day, if you have a bad day one day - don't let it get in the way of a good day the next. Wake up with a clean slate!
Worst Advice: "You should go to a Pranic Healer"
Best: But what if it works out? In regards to a life choice, treatment, new equipment! I always try to go into it with the thought that what if this actually helps and improves my life?
Worst: If you don’t use it you lose it. If you gain weight it will make it harder for you to remain less disabled. When dealing with a progressive disease that can be unpredictable these thoughts don’t help. They put blame on the disabled individual who has no control of when and how this disease will progress.
Best: suffering is not a competition.
Worst: everything cliché - you have to play the hands you're dealt, etc.
Well I can't answer what's best advice r worst advice advice everyones different so do what makes work for u
Just be you fight
I Really Am Not Sure If I Have A Dx Of Sma. I Was Recently Reviewed At John's Hopkins University For Spine And Neck Surgery To Only Find Out
So Say I Do Have This Condition, The Referral From My Neurosurgeons To This Speciality Hospital Said Paraspinal Atrophy, SMA
I Have Had 3 Falls In 5 Days. My Legs Collapse Without Warning And I Crash To The Ground. I Am Frightened. I Don’t Know What To Do.