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Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Can I Go On Hospice With SMA

Can I Go On Hospice With SMA

I am 71 years old. I was diagnosed with SMA type 4 32 years ago. I have a colostomy, a feeding tube, and use a ventilator daily for non invasive ventilation. I am quite weak, can no longer walk and can only stand briefly with assistance, I am bed bound and have chronic pain. I feel I have little time left on this earth and my doctors agree. I have started hospice, but the hospice company says that SMA is not considered a terminal disease. They have, however, qualified me for hospice with my… read more

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