member spotlight life can still be fulfilling no matter what level of mobility i have and spinal muscular atrophy | mySMAteam

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Top 10 Search Results for "member spotlight life can still be fulfilling no matter what level of mobility i have"

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How To Spend A Day?
A mySMAteam Member asked a question 💭

Hi guys , I am 22 years old.I live in the countryside of Malaysia.I'm here today to ask a small question. but my english level quite bad, hope you all who read this post can take some patient to understand my voice.

Since I didn't have a university, I only finished my second year of high school.I have graduated for almost four years,but I never know how my future will happen .To be honest, I always thought I was an ordinary person, because I went to an ordinary high school, and I only realized… read more

A mySMAteam Member

My heart goes out to you. I find it hard to imagine being in your situation. Are there care facilities available for you?

I'm A Life Partner Caregiver Team Member. Trying To Get An Intermittent LOA. Doctor For Tammy Refused To Sign Unless She Fired Her PCA. ??
A mySMAteam Member asked a question 💭
Lack Of Oxygen In The Blood
A mySMAteam Member asked a question 💭

I have been suffering from a lack of oxygen in the blood for two months, and I started using supplementary oxygen and I did not feel better. For those who went through this experience, what did you do during the lack of oxygen?

Earning Money While On Disability
A mySMAteam Member asked a question 💭

How do you earn money without loosing critical disability benefits and Medicare ? So, in many ways, I am very lucky. When I started needing attendant care, I did the math and there was no way I could earn enough money, keep working, and pay for attendant care. The programs in my state that cover attendant care very strictly require an individual have less than $2,000 in assets total (including such things as gold teeth, burial plots, etc) and not be employed. If not for my father's support… read more

Headrest Recommendations
A mySMAteam Member asked a question 💭

Hiii! You see, I have sma 2 and my neck is a little weak, I have been looking for a comfortable headrest for a long time but I have not been able to find one. They are all too big or do not reach the back of my neck, especially because my backrest is too high and I have been told that it can not be lowered. At home I have no problems but to go out in the street or to travel by car I have to take one of those neck pillows that are used to sleep on airplanes. I would like to replace it with… read more

Does Anyone Know Where I Could Sell Our Used Ki Mobility Wheelchair In Texas?
A mySMAteam Member asked a question 💭
As Am Adult With SMA, How Does One Deal With A Caregiver Who Treats You Like A Child Especially When Rely On Them For Basic Needs?
A mySMAteam Member asked a question 💭

I am 40+ years old, have held jobs, am reasonably intelligent, but I still look like a teenager aside from a few grey hairs. My dad is 83, a little hard of hearing. My attendant, the only reliable attendant I can find in the entire state, is nearly the same age, is physically in much better shape, but is even harder of hearing. So I was dealing with my father who gets very grouchie when he hasnt eaten trying to help him with cooking which he doesnt know how to do and caregiver of course walks… read more

A mySMAteam Member

Totally understand how that goes with unreliable care attendants, one's that you really don't want to be alone with or need to be either, or one's that actually really show up early or on time every… read more

Can Adult Be Treated With Zolgensma?
A mySMAteam Member asked a question 💭
Can Anyone Give Greater Clarification Of Difference Between Smafk And Type 4 As Seem Interchangeable
A mySMAteam Member asked a question 💭
What Is Finkel Type SMA? Read Article...
Medicare, Medicaid, Medicare Advantage,Medicare Special Needs Plans,glasses...???
A mySMAteam Member asked a question 💭

One day last week I asked my attendant as usual to clean my eye glasses before putting them on me. They were still really foggy...as an artist , I really rely on my vision, so he cleaned them again . Still foggy, tried glass cleaner, lens cleaner etc. After an argument in which I insisted that I was not in fact going blind, I went to the eye glass store and discovered that I need new glasses...the scratch guard wore off my glasses...now everything is foggy. I thought scratch guard was… read more

A mySMAteam Member

Thanks. I know there are Medicare Advantage plans that cover eye glasses...but apparently regular Medicare does not and it appears Medicaid only to age 21. The problem is I am not sure if my… read more