How do you handle telling someone that you can't take them to where they want to go on a date because the place they want to go is not really wheelchair accessible..even though the website says it is?
So, the lovely person I have been dating really wants me to take her out to a Halloween theme park for her birthday. Asside from the billion of complications of trying to arrange a ride there, pick her up, arrange for my attendant to put me to bed at night and the steep cost of tickets more than… read more
There are actually quite a few more accessible places than people realize,,,I know I didn't until I started dating my husband. There's even accessible water parks,,,100% accessible. Just go for… read more
I have SMA type 3 and I feel like i’ve gain some weight and don’t know how to loose it. I heard Fasting can just make things worse.
Limit your portions. No one should eat until their stuff. And do lite exercises.
I want to lose weight, SMA type 2
We use a stand-alone toilet and Hoyer Lift to get my adult son onto it. Long sitting time takes a lot of energy,
Thanks Fred! Will hunt down some plastic options to try.
My first neurosurgeon told me an average adult would be around 47 but that was depending on different factors
Please understand I'm not bitter, just frustrated. Truth be told, I'm grateful that God has been very good to me. I am now 72 years old. Doctors told my mom I be lucky to be 12 or 14.😁😁😁😁😁
Everybody in this group always have a Beautiful heart. I would like to apology everybody. Sorry I have not get to you sooner. I also have seizures to. I do not understand why. Do everybody understand… read more
I have type three and have noticed neck weakness too so I tried neck pillows and supports bur found this on Amazon https://www.amazon.com/dp/B07XKJVQ3W?psc=1&...
you can shape it any way you want… read more
My son has been diagnosed with a genetic pathology of VRK1 non5q SMA. It appears to be very rare with little to no information about it.
He has advanced atrophy of his right calf muscle and the… read more